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Jeannie McClelland

Fibromyalgia

32 posts in this topic

My primary care doctor sent me to the rheumatologist because she thought I had fibromyalgia. When I saw the rheumatologist, I not only got the fibromyalgia diagnosis but CREST as well. What a shock! Then I read that fibromyalgia can start in childhood and it clicked. All those years that I labeled having an allergy flare (42 years total - started when I was 8) was actually a fibromyalgia flare but I can't truthfully identify the difference between a fibromaylgia flare and a sclero flare. I just know that it hurts, I ache all over, I have fever and chills and I am exhausted more so than normal. But then I have had insomnia since I was a little kid. Which comes first??

 

Lynne

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Very interesting topic. I was diagnosed with Fibromyalgia in 2007 by a previous rheumatologist. When I mentioned it to my neurologist, while undergoing testing for the brain fog and headache issues, she harshly scolded me and told me to never mention that to another doctor because they will think I'm crazy. Needless to say I was very taken aback and actually offended. Even though she doesn't believe it's a "disease" she could have addressed it better.

 

I really liked her and have gone to her for a few years. Unfortunately due to that I may seek another if I ever need the services of a neuro again.


I may have Scleroderma, but Scleroderma doesn't have me!

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I was diagnosed with fibromyalgia about a year ago. I take Lyrica for it. It does seem to help.


Sam

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HI, I was diagnosed with Sclero in May 2007 and last fall. My primary and my rheumatologist are trying to see if there is a link.

 

Thanks for asking.

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Hi lynne09,

 

I hear exactly what you are saying! It has got to be so difficult to realize this all was likely a problem for you since your childhood!

 

If you were able to get a good nights' sleep, you might just feel like you've slept on a cloud, I would imagine.

 

Fibromyalgia certainly doesn't allow for a decent sleep pattern. I was diagnosed in the 1980s with Fibro, so I have great empathy for you. It is amazing how we tend to adapt to the hands we are dealt, isn't it?

 

Your second to the last sentence, I can relate very well with:

"...I ache all over, I have fever and chills and am exhausted more so than normal".

 

There are pain medications that are available, one of which has given me the opportunity to be able to sleep at night.

I'm sure you have been using one for years, but I know the memory foam really helps to relieve me of painful pressure points while working on sleeping.

 

I haven't done so yet, but would also like to take this opportunity to welcome you to this wonderful family of ours! This "family" is loving, caring and supportive. When folks have like experiences, they share.

I so appreciate everyone here and I am so glad that you have found your way here and are posting!


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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