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Joint Pain After Hot Bath

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Hi there~

 

I am just wondering if anyone here experiences joint pain (knees, hips) after a hot bath/soak?

 

I have been trying different things to "de-stress" and a hot bath is one of them. When I get out, I can barely bend my knees, and feel so stiff and sore. Once after getting out of the jacuzzi at the gym, I had to just stand there motionless on the stairs untill my body recovered! (so embarressing)

 

Any one else? :huh:

 

Thanks~

erin


*WestCoast*

 

********

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Erin,

I haven't notice stiff and painful knees after a hot bath (because I don't take baths. Can't get out of the bathtub! :) ); however, when I sit for any extended length of time, I have to stand and pause because my knees and hips won't work. We just did a long road trip and everytime we stopped (after 2-3 hours of driving) I would have to stand by the car for a minute or two before I could start walking or "wobble" as my hubby calls it. Sometimes during the night I have to get up and walk around because I get severe hip or knee pain. It's weird.

 

I just chalk it up to the fact that we're dealing with a type of arthritis and it's just one of the symptoms. Take it slow AND if it hurts to take a hot bath - then quit taking a hot bath. :lol:

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Hi Erin,

 

I am sorry you are having joint pain after a whirlpool. As it happens, the typical warning for whirlpools is: "If you are pregnant, have high blood pressure, heart disease, or other medical condition, please consult with your physician before beginning any hot water therapy program."

 

"Other medical condition" would certainly include scleroderma, which often involves high blood pressure, pulmonary issues, or heart disease, too. So please check with your scleroderma expert before indulging in more whirlpools as well as see what might be causing the increased pain.

 

Before I knew of these warnings, I had already found that I couldn't tolerate whirlpool or hot tubs, with severe Raynaud's, dizziness, fatigue (lasting for days on end) and worsened fibromyalgia afterwards. Which just wasn't fair, as I was craving warmth (don't we all?!) and thought it would be heavenly and rehabilitative. I was even thinking it might cure me, as we are all entitled to our own peculiar denial and fantasies.

 

So, I have to focus now on just being warm, not hot; and a gentle bath without whirlpool. It's not the same, but at least I don't feel "more sicker" afterward.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hi erin,

 

A hot bath has always made me sick to the point of close to passing out. The other symptoms I've had were so severe I did not notice any joint pain. I do not take baths any more, only warm, not hot showers.

 

With gentle thoughts,

 

Judy


A happy heart is good medicine.

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As always you ladies are great. So today I saw the doctor. I asked her this very question, her response was that some people's arthritis reacts to warm temps and some to cold temps. This wasn't a very in depth answer, but it will do.

 

So no more jacuzzi's or hot baths for me.

 

I have more to share about my appointment but will save that for another post.

 

Thanks again for your help.

 

erin


*WestCoast*

 

********

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That's interesting. I think mine reacts to both. I am incredibly comfortable between about 74 to 78 degrees. So of course, I live in Minnesota where the temp probably hovers there about one day a year.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Erin- I have this same exact issue and have been researching online for the last few hours! My issue is only knee pain after a hot bath, or hot yoga.

 

What else did the doctor say when you went there? Any advice? My family doctor said to see a joint doctor, but I haven't done that yet. Have you found any remedies for the joint pain?

 

Thanks alot!!

Renee

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Hi Erin,

 

Our son is twelve, and has had issues with heat for awhile, however his body (if we don't get him cooled down) will go into a crisis, heat stroke symptoms and he has had a few grand mal seizures, which they tend to think that they were caused by this also, all his tests show no sign of seizure disorder. Anyway we have had two doctors in the same room (last week) say two different things, one said yes the scleroderma can do this, with swelling of hands and flushing and then keep going if not controlled, the other said no. We are seeking a second opinion from one of the doctors listed from this group, Dr.Jimenez, at Jefferson Hospital, and also we are waiting to get into a special diagnostic clinic of "super doctors" because our son also has a genetic disorder and multiple medical problems, and is a very rare case, like others here, he his tests come back normal, the only test that was abnormal was IgG 41 subset class 4....but yes heat is an issue with him.

 

Kelly

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<< his body ( if we don't get him cooled down) will go into a crisis, heat stroke symptoms and he has had a few grand mal seizures, which they tend to think that they were caused by this also, all his tests show no sign of seizure disorder,>>

 

Hi Kelly ,

 

Oh my goodness, this is Gareth!!! The first time he past out, I thought it was a grand mal, but the doctor said *no* because he doesn't have Epilepsy.....JUST pseudo seizures. I have to make sure his baths aren't on the hot side to prevent that and not too cold to bring on the Raynaud's. He's also got the Orthostatic Hypotension that comes into play, too, when standing up to get out of the tub. It's so much easier with a shower but, sometimes, it's not worth the argument!!!

 

Take care, Everyone.

Margaret

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