Jeannie McClelland

Telangiectasias (red spots)

8 posts in this topic

Hi Jeannie - Good question. I have asked a few doctors and they have said they didn't believe so but one rheumatologist said he wasn't sure. I have them everywhere. It seems like a get new ones on a weekly basis! I have had many laser treatments on my mouth to get rid of them due to bleeding. My doctor regularly checks in my mouth and down my throat. It will be interesting to hear what others say. -Ann

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Jeannie,

 

I don't know the answer, but I'm interested in finding out, too. I started with just 1 spot on my cheek near my nose, and now I have several on my tongue, on my upper arms, torso, and upper chest. The spot on my face has been there for at least 1 year, but all the others have appeared within the last 4-6 months. I wonder if there is any significance to this, and if they ever stop appearing?

 

Stef

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Hi Jeanne,

 

My rheumatologist shrugs them off like they were pimples that will go away. I've only met one rheumatologist that was interested in the problem and all she said was wow you have them on your arms and legs too. The literature kind of shrugs them off and says they are just a cosmetic problem on the skin. The internal ones can cause problems.

 

With gentle thoughts,

 

Judy


A happy heart is good medicine.

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I too have multiple telangiectasias. The first one appeared on the inside of my lower lip. Now they are on my face, upper arms, neck, chest and abdomen. I had a CT scan (actually 2) and was told I had a hemangianoma on my liver (2nd CT showed 2). Could these be internal telangiectasias? My next rheumatologist appointment is next month. I guess Ill ask him (even though he seems reluctant to give me a definitive answer to anything). Maybe it's just another unsolved mystery :mellow:

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Hi Doodlehead,

 

I may be wrong, I often am, but I think hemangiomas and telangiectasias are both vascular things, but a bit different. Telangiectasias only "count" towards a scleroderma diagnosis when they are on the hands and/or face.

 

As I understand it -- and keep in mind I have no medical training at all -- liver hemangiomas are quite common in healthy people, with about 5 to 10 percent of the population having them. My husband has a huge one, which when it was first discovered they worried that it was cancer (it is not) and during one surgery they halted surgery over concerns about what the huge thing was on his liver. I told the surgeon it was just a hemangioma and they continued with his surgery. So if you ever have an abdominal surgery, make sure someone in the waiting room knows about them or you might have an "operation interruptus".


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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I think (I am not a doctor) that the external telangiectasias are benign, and generally just a cosmetic concern.

 

However, if I had them popping up left and right, I would probably want an endoscopy just to make sure there are no internal ones in the stomach, which can cause GAVE. GAVE can cause serious bleeding and be quite serious. GAVE is also pretty rare :) So, I wouldn't worry to much about it.

 

I have no idea about liver hemangiomas but I am sure Shelley is right.

 

Jen

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Shelly,

Thanks for the quick reply. I am trying to get as much info as possible (in little chunks, this really is overwhelming at times). Like I said my rheumatologist seems hesitant to give me any definitive answers. I understand that autoimmune diseases resemble each other and that it takes time to be sure what you have to administer the correct treatment. I just have a hard time with all the symptoms I have and being told that they probably are not related. Without going into detail (my right hand and forearm won't allow me to type that much) I don't know of any "healthy people" that have experienced any of the conditions I have let alone multiple ones at the same time. I am so glad I came across this website. It reassures me that I am not going nuts (ok maybe just a little that one I have seen in "healthy people")

 

Thanks again

Doodlehead

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