Snowbird

Raynaud's

8 posts in this topic

Hi all. Is there an actual test for Raynaud's? If so, what might that be? Didn't think there was, thought it just went on blanching and colour changes, etc? Thanks!


Sending good wishes your way!

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Hello Snowbird

 

I was given 2 tests to confirm the Raynaud's diagnosis and its severity. One was a nailfold capillary test where the look at the capillaries in the fingers under a microscope and the distortion of theses indicates disease and severity.

 

I also had a thermal imaging test which involved having my hand in cold water for a number of minutes then it was viewed using a machine to see how quickly it warmed up and where.

 

In conclusion I have Raynaud's but it's not as severe as it could be :) . My hands do not go red/white/blue and never have. Actually I think my feet are worse because they have shown a bluish tint before.

 

From memory 95% of people with sclero have Raynaud's.

 

Hope this helps.

 

Amanda


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

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International Scleroderma Network (ISN)

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Hi Amanda

 

Yes, it helps. I'm going to put that on my list for my next rheumatologist visit. I was curious and under the impression there was no test available for it. Thank you! Hope you're doing okay lately!


Sending good wishes your way!

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Hi snowbird,

 

I have never taken a test for the raynauds. The doctor see it as soon as I walk in. Mine go from white/blue/red. They stay blue most of time. People notice it right away.

 

I did have the nailfold test. Mine were abnormal.

 

Hope this helps

 

Hugs,

Nina Lynn

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Snowbird,
The first time I saw the rheumatologists my fingers were white because it was so cold in his office. He immediately turned off the AC when he saw my hands. So Raynaud's was my first diagnosis. blink.gif

Apparently, when it's not obvious, there are several methods for diagnosising Raynaud's - nailfold Capillaroscopy being one. We have a section on Raynaud's Diagnosis that you might want to take at look at. It talks about several methods that could be used. Apparently the condition of the nailfold capillaries can even indicate if your have primary or secondary Raynaud's. Happy reading.

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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My Raynaud's was quite obvious to my general practitioner and consultant because of the white, blue and red phases which they observe on just about every occasion I see them. The consultant did do the nailfold test and mine are abnormal he did say that I had secondary Raynaud's and it tends to be much harder to treat.

 

Jensue

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I never had a specific test for the diagnosis but the day she said I had it I was on the table in a gown and my feet were dangling and turned dark blue. She immediately knew then that I had it. Thankfully so far I haven't had any digital ulcers and worry about them every time I have an attack. Being we are in the middle of a winter and a winter that is colder than it's ever been I have numerous attacks even though I'm trying to be careful.

 

Warm hugs,

 

Peggy

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Thanks everybody! Now I have some reading to do. :blink:


Sending good wishes your way!

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