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Honey

Ankle and Feet Skin Tight, Dry, and Cracked

8 posts in this topic

Hello, friends.

 

Since my last post, I have had blood work done and blood levels are normal. My echo and x-rays reports have been sent to my rheumatologist. I am taking 5mg prednisone daily. Besides the 20 pound weight loss, I am itchy around the core and back, but my feet seem to be tightening more and more, despite tons of lotion being applied. The range of motion to the ankle is almost none. The skin is severely dry and cracked, and very painful. Does anyone have any suggestions for me, other than keeping my feet as moist as I can with lotion?

 

My rheumatologist told me I had scleroderma before the tests just from the appearance of my feet and legs, and the limited range of motion in my joints. I visit her again in a few days to hopefully determine a diagnosis. I have been a fitness instructor for over 27 years, and this is so very difficult. I have had to reduce my classes in half, and only teach line dancing and gentle yoga. It is painful, but I know I have to exercise.

 

Thanks for all your replies.

 

Honey

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Hi Honey,

 

I have the same problem with my feet. They are tight and cracking. My ankles are not so bad. I put lotion on every night before bed but it does not seem to help. Exercise also helps me from getting stiff. I do Zumba which is a dance class. It really helps keeping me getting stiff and it is fun. I also do yoga when I can get to class. It is harder for me to do, but I feel better when I do it.

 

Hope you find something that helps,

 

Hugs,

Nina Lynn

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Hi Honey,

 

I've been dealing with ankles too in every single way.. Skin getting tight, hurting joints. I'm sorry I don't have any answers for you but I totally know what you mean. To me it's really hard to loose mobility from the ankle since I'm kinda a dancer. That's what I love to do and what I do almost daily.

 

Hopefully you'll get some help for those skin issues. I've been trying lotion too and the itchyness drives me insane.

 

Take care,

Emmi

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When I first saw the rheumatologist that finally diagnosed my scleroderma is when my feet were terrible swollen and tight. This is where she took the biopsy from the area that was affected that confirmed her diagnosis. My feet were so swollen I couldn't hardly get shoes on. The swelled part was so hard it was like having two bowling balls down there. I haven't had that happen for a long time now thankfully.

 

Good luck at your appointment. Please let us know how you are doing.

 

Warm hugs,

 

Peggy

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Hello Honey

 

I too have immobile ankles and feet with the skin being so tight and unbelievably painful around the ankle! I use prescription creams and so forth, but nothing is going to make it like normal skin.

 

I found it hard enough losing full mobility as someone who enjoyed exercising, for someone like yourself it must be doubly difficult.

 

Please let us know how you get on at your next rheumatolgy visit and take care.

 

Amanda


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Thanks to all who have taken the time to express nice thoughts and have shared personal experiences. I believe it's what gives us encouragement to keep putting one step in front of the other. The more we share, the more we care, the more strength we can develop to bear this burden.

 

Much love,

Honey

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Just an update. I need a CT scan since cardiologist report to rheumatologist indicated more testing should be done. I have been give prescriptions for methotrexate/folic acid, and neutronin. My prednisone has increased from 5mg to 10mg. Hopefully, this medication will do its job for me. I am not happy about more medicine, but I am hoping it is all well.

 

I explained about the severe contracture of the joints, especially my ankles and knees, and the pain from the raynaud's and nerves with my feet. She is so sympathetic, and like most doctors, is just as frustrated with this disease as I am. Support from family and friends is so important, and sometimes I think they are more frustrated and upset with it than I am. Their concerns are my strength against this enemy.

 

Peace and grace,

Honey

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Honey

 

Thanks for the update.

 

I hope the CT goes well, of course now I have a story to tell about mine that did NOT and eventually they did it with my lying on my front so I could not see the THING instead seeing the room and most importantly for a claustrophobic...the door!

 

I tried to climb off the table whilst the machine was moving me closer and closer to the THING. The original film only showed half my liver which I still say is better than none.Recently when I had my echo my liver suddenly popped into view and I explained to the tech that it was revenge for being excluded from the CT, my husband then tried to explain why the word Chardonnay was written next to it! :lol:

 

Amanda


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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