smac0719

Feeling better these days

27 posts in this topic

I'm in as well, might be just the thing I need to boost my emotional meltdown--

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Hi TJ,

 

I'm sorry you're in a meltdown. I know how that is! Did the Sclero Happy Dance help to restore a bit of your spirits yet?


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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How about a song to go with our Happy Dance?


Love makes the world go around!

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The Happy Dance Song

(sung to the tune of "It's a Small World")

 

When I woke up this morning

And jumped out of bed

It occurred to me

That my pain was dead

I pranced across the floor

And like never before

I was doing the Happy Dance

 

It's a Happy Dancing Day,

Because my pain has gone away,

And my skies are never gray,

On a Happy Dancing Day!

 

On days when things,

Are not as good,

And my spirits fall,

It's still understood,

That soon there could be,

More dancing for me,

And another Happy Dance

 

It's a Happy Dancing Day,

Because my pain has gone away,

And my skies are never gray,

On a Happy Dancing Day!

 

It's a Happy Dancing Day,

Because my pain has gone away,

And my skies are never gray,

On a Happy Dancing Day!

 

 

The dance steps for this are very easy, just watch any toddler giving their best diaper boogie and follow along. Arms bent and held in close to your side, knees bent with lots of tush wiggling and a huge smile!

 

Penny

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Penny,

 

I LOVE it! Thanks for the huge smile this morning!

 

Shelley,

 

That's a really good idea for fundraising you know! Especially if you start the bidding at about 100K. I would make a fool of myself for no less. (Still working out self-esteem issues and have some pounds to lose <_< )

 

I already have my dance choreographed in my head. Waiting for a Happy Dance Day to practice it. Just to give you guys a visual, it starts out with me and a cane, trying to get out of bed. Then it goes into a little soft shoe shuffle and ends with me twirling my cane like a baton and tossing the out the window. Still picking out the music.

 

I'll start the bidding on Jefa's Happy Dance at $100!


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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Penny,

 

That was so creative!

 

Shelley,

The Sclero Happy Dance has taken a life of it's own. I love to dance and watch dancing so I'd dance for Sclero any day. Hey, what about a Dancing for Sclero fundraiser! I envision it as a dancing competition where dancers pay a small entrance fee to participate and the winner wins a prize or sorts (maybe even a 1st, 2nd, 3rd place). Spectators pay a fee to watch and all funds collected (minus the cost of the prizes and the other minor costs associated) go towards Sclero research!

 

I'm going to get some folks together and see if we can feasably pull something like this off. It sounds like fun, but I know there is a lot hard work involved in fundraising (been there done that).

 

Even if it's not this particular event, I'd love to do something in my community that brings awareness to Scleroderma.

 

I'll keep you posted on my efforts.


I may have Scleroderma, but Scleroderma doesn't have me!

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Penny, what a wonderful Happy Dance song you wrote!

 

Barefut, I'll see you one and raise you one; I bid a $125 ISN donation for a Jefa Happy Dance video.

 

Smac, we'd love all the help we can get with fun-raising! Everyone who wants to volunteer in any capacity, we encourage to apply as an ISN Volunteer. We always have openings for fund raisers, of course.

 

See our ISN Organization Chart. In the upper left hand corner you'll see the steps to apply. If you have any trouble with any of the forms (some people do) please email me or call our Hotline at 1-800-564-7099 for assistance.

 

Even people who aren't interested in volunteering may be quite interested in our Org Chart, as it links to all the profile pages for ISN volunteers, both alphabetically and by teams.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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smac0719,

 

I keep laughing everytime I pull up this post. It has taken on a life of its own, the song, the dance, the bidding and imagining the contestants! It is all very funny and given me the boost I needed today.

 

Shelley,

 

I'll be trying out your granddaughter's Clean the Kitchen Happy Dance! While singing the song, cleaning and dancing, I'll bet my kitchen will sparkle like never.

 

Penny,

 

I loved your Scleroderma Happy Song! What a talented and creative group we have here!

 

 

Laughing til my belly aches,

Razz


Live well, Laugh often, Love much

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Dear Razz,

 

You should really seriously consider doing a Sclero Happy Dance on video for us. We need a collection of Razz Videos!

 

For any of you who have missed it, Razz did a fabulous Sclero You Tube video for us. And clips from other tapings she did for us that day were used in a CNN program recently, which helped raise awareness of scleroderma on a CNN Heroes episode.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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What an delightful thread, I really love to hear good news from all of you! :) I'm become so happy every time I read a thread like this.

 

To add some good news of my own too.. My rheumatologist here in Lohja sent me to a specialist to Helsinki and the specialist seems to be pretty good. He ordered bunch of different tests and after them we're gonna decide about medication or other treatments. I'm happy I'm finally seeing a great doctor who knows something about this.

 

Take care you all,

Emmi

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Hi Emmi,

 

I'm thrilled that you finally have a great doctor! That can make all the difference in the world.

 

To celebrate, we're going to have a Sclero Happy Dance Line with all of the contestants in this thread. We're going to wear our Sclero Penguin dance outfits (a subdued tux with red tie and blue hands).

 

Oh no, we don't have any musicians yet! Can anyone around here play an instrument? We're in need of a choreographer, too. Oh well, in the meantime I'll put on, "It's my party and I'll cry dance if I want to."

 

Altogether now, one, two, three -- lift left leg, raise, kick!

 

Oh dear, the whole lot of us seem to have fibromyalgia. We all fell down!!!

 

But, we did it just for you, Emmi. :rolleyes:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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