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Penny

Sclero on HOUSE

12 posts in this topic

Penny,

 

I saw it too! It was great to have "systemic scleroderma" mentioned so many times; however I did have a few problems with the exposure. What I disliked the most was that they made it sound like the diagnosis was a death sentence - which it's not. Yes, it's serious, but a death sentence - NOT! There were a couple of other things, but I guess I shouldn't be so critical. :) Getting scleroderma mentioned enough is the important thing.

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Hi all,

 

I agree whole heartedly Janey. I was watching it with my son, totally unaware Scleroderma was going to be mentioned. After they made the tentative diagosis of "systemic scleroderma" and commented about it being a death sentence, my son looked at me and said, "Dad, you don't have the systemic kind, do you?" I couldn't lie to my son and explained to him that though I did, it is not a death sentence as portrayed on the TV, and I was going to be around a long time. The whole thing caught me by surprise and was a bit uncomfortable. I had big time problems with the way it was handled on the episode. That being said, I love the show.

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Penny,

 

I can't believe I missed it! I had been waiting to catch the House episode on scleroderma and of all days to have a dinner engagement last night, I didn't get to see it. Maybe I'll catch it next time around. I'm always interested to see how scleroderma gets portrayed or explained.

 

Any exposure is great! (Ditto to...it is not a death sentence!!)

 

Razz


Live well, Laugh often, Love much

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Hi Penny,

 

I saw it too, it did sound like scleroderma was a death sentence. I feel that it is more of a life sentence.

 

Cher

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Hi, Janey, David and Razz,

 

I was a bit put off by the whole 'death sentence' thing as well... (that and the fact that no matter what is wrong just about every patient throws up blood at some point.)

 

I think my hubby put it best when he said to me last night after the show-

 

Technically, being born is a death sentence and the average person watching the show will not remember that point... they would just say, 'You have Scleroderma? Where did I hear that word before?', leaving the door open for some *real* facts about the condition.

 

One other thing they overdid was the medication House was taking. That is the same thing they put me on after my last surgery hoping I could tolerate it and what flashed through my head watching that part was 'no one told ME that it could kill me'.

 

I did consider writing the producers of the show and setting them straight a little, but it would not put the misinformed cat back in the bag and when it comes right down to it, at least they got the name right and people learned that the condition is out there.

 

Penny

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The orange jumpsuits would match my fading reddish hair, I guess, but what with the teleangectasias, I'd look like a fat little tomato! :lol:

 

Not a death sentence here, either. Nope, no way. I expect when I try bungee-jumping at 80 or so, my kids will cut the cord. . . Won't be sclero though, I'm simply not going to allow it.


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Hi Everyone!

 

If you are interested, last week's episode should be available for viewing today on the Fox website. They always have an 8-day wait before making the the episode available.

 

I am watching it today!

 

Janet

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I saw that House episode as well ... has anyone noticed that alot of those "Mystery Diagnosis" and "Real Stories of the ER" kind of shows are having a run on patients with scleroderma?? I love watching those shows and I SWEAR every third one has a patient with some tye of scleroderma or at least an autoimmune disorder of some sort ...

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Penny,

 

Is the name of that episode called "Skin Deep"? If it is, it's on tonight at 8:00 p.m. central time on the USA cable channel. I hope that's the one because I'm not answering the phone for that hour. :)

 

Thanks,

Razz


Live well, Laugh often, Love much

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Hi Penny,

 

Would you (or anyone here) by chance recall the name of the House episode on scleroderma? :huh: The episode I watched was not the one I was hoping for, even though it was interesting. Thanks for your help.

 

Hugs,

Razz


Live well, Laugh often, Love much

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