annkd

Swollen fingers and burning in legs

4 posts in this topic

Hi all,

 

For a while now, when I am up and about doing anything from walking or chores, or shopping, etc. that my fingers get swollen and my legs get a hot, burning sensation (they look like lobsters). It is painful and when it occurs, I have to sit down. It takes quite a while for it to subside. Does anyone experience this? It seems to be coming on more frequently and I am getting concerned. Many thanks!

 

Ann

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Hello Ann

 

My guess and it's only a guess is erythromelalgia also known as erythermalgia. It's a rare disorder in which blood vessels, usually in the lower extremities, are episodically blocked and inflamed. There is severe burning pain and skin redness associated with this blood vessel blockage. The attacks are periodic and are commonly triggered by heat, alcohol consumption, or exertion. It can occur either as a primary or secondary disorder to an autoimmune disease. It can cause swelling as a symptom as well.

 

You can get both EM and raynauds and some treatments for raynauds help EM, I have both and although the raynauds is more frequent the EM is more severe.

 

Obviously speak to your doctor to get a firm diagnosis meantime elevating the effected area is supposed to help but avoid cooling it with cold treatments I.e. getting quick relief from submerging your hands in cold water as this can eventually make the EM worse and presumably if you have raynauds you'll end up with an attack of it!

 

I hope this helps and there are EM sites it you google it.

 

Take care.

 

Amanda


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Ann

 

Forgot to mention...

 

75mg aspirin daily helps thin the blood and helps with EM, but check with your doctor first, as not everyone should be taking aspirin. A way to cool an area down is to put lotion on it and then put a fan on the area...ahhhhhhh.

 

I have found that the up side of EM is that unlike most sclero's I am not always cold in fact I prefer winter to summer so living in the UK works well for me!

 

Take care.

 

Amanda


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Amanda - thank you for your information regarding erythermalgia. I will look into it and talk to my doctors about it. I'm having a rough day with it today. It is time I got to the bottom of this problem. Many many thanks! -Ann

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