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Methotrexate

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Hi everyone,

 

I have been on methotrexate for over two weeks now. I feel worse than before. It seems like I have not had a good day since I started it. It has not helped that I got a bladder infection the first week. I have taken all my antibiotics and I still don't feel well. The are on my right side under my rib cage hurts, lower back and my joints are really sore. I hurt all over. Has anyone had any reactions like this with the methotrexate? If so, how long before you felt better.

 

Thanks,

Nina Lynn

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<<The area on my right side under my rib cage hurts>>

 

Hi Nina Lynn,

 

I had Gareth to the gastro doctor in Dec because that same area hurt on him. He r/o gallbladder, pancreas, or liver problems. His primary care physician ordered an X-ray and it showed RLL pneumonia. He had no previous cold or cough.

 

Take care, Everyone.

Margaret

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Hello.

 

My experience with methotrexate (MTX) has been okay, almost like I am not taking it at all. I take the pill form with folic acid weekly, and continue the folic acid daily. I am waiting for it to work for me, although I understand it can take up to 3-4 months to kick in.

 

Everyone's reaction is exceptional, just like this disease.

 

Kindest regards,

HONEY

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Hi Honey & Marget,

 

Thanks for your responses. I guess if I am still feeling bad, I will call the doctor this week.

 

Honey,

 

I am glad you are doing well on MXT. Please keep me updated.

 

Thanks,

Hugs,

Nina Lynn

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hi nina lynne,

i took methotrexate last year , the pill form with folic acid,it was ok first 2 weeks or so then I had a bad reaction, for 12 hours I felt like I was in a washing machine on fast spin and feeling very sick and ill I was taken off them straight away everyone is different as I've read some people have no symptoms, hope it works out for u jaxsxx


live life for today and not for tomorrow

 

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Hi Nina,

I've been on MTX for over a year and my experience has been the same as Honey's. I do the injection and folic acid. Sounds like you have something else going on.

 

Christy


Love makes the world go around!

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Hi Nina Lynn,

 

Yup...if I were in your boots, I believe you have a good idea there, about getting in touch with your dr, should you not feel better within a reasonable amount of time.

 

Though I'm not a dr, I would not associate these symptoms you are speaking of as being related to the MTX...

I used MTX for 13 years: pill form, drinking the liquid in juice and the last 8 years, of the 13, injecting sub cue.

 

Please keep us posted?


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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I was on Methotrexate for over 2 years. I took folic acid with it everyday. I felt a whole lot better about a month later but nothing like you are experiencing. I was taken off it in January and now I feel horrible! All my bones hurt and my chest is squeezing again. I can feel the pain in my bones and it's not fun. I go back in April. My rheumatologist wanted to see if sclero is cyclic or not. But I'm not liking this cycle ughhh

Hope you feel better :)


CarriePan :fairy:

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Thanks for much for your replies. Today was the first day that I did not feel soo bad. I still have the pain in my lower ribcage. I do take folic acid everyday. I take my third dose of MTX tonight. If the pain gets worse or is still there I will e-mail my doctor tommorrow. I will keep everyone updated.

 

Thanks so much,

hugs,

Nina Lynn

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