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Kathy D

New personal record, 11.5 hours of sleep

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Laid down on the couch at 7 pm, my husband put me to bed at 7:30, and I slept sound till 6:30 am.

 

Thank goodness for prednisone and NSAIDS as my joints don't wake me up anymore, just one potty break and minor readjustments for the puppy. :)

 

Is this normal?


Diffuse Scleroderma Diagnosed March 2009

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I only wish I could get that much sleep! I feel like a zombie half the time because I am so exhausted! If you needed the sleep your body was telling you so.

 

Hugs,

Lisa


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

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Hi KD,

 

I agree with Lisa.

 

There are days when I wake up after 7 hours of sleep and then other days when I will sleep 10 hours.

I don't get at all concerned about it, simply because I may not have slept well for several days, or because I had a great deal more to do the day(s) before.

 

At any rate, our bodies do let us know and when we are able...go for it ;) !


Special Hugs,

 

Susie Kraft

ISN Support Specialist

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International Scleroderma Network (ISN)

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Since I've had sclero and all of the accompanying diseases I have with it I don't think there's a "normal" anymore so to speak. I think there's a sclero "normal" and your body needed that much sleep and required it so you were able to get it. That's the key I think in all of this is listening to our bodies and doing what it's requiring of us if we can. I haven't been able to sleep the last 3 nights because of the good 'ole reflux again. The night before last it took 4 of my GI cocktails to finally get some relief and after that much of that concoction I was so nauseated I felt like I had the flu and could puke at any minute. So last night when it hit I just took the aciphex again and the karafate and that worked. Then I was just up all night in an upright sitting position in bed so I couldn't lay down.

 

Good for you for listening to your body. Hopefully you will continue to get the rest your body is requiring.

 

Warm hugs,

 

Peggy

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Oh wonderful, lovely sleep! I'm with everyone else (finally) - if my body wants to sleep for that long, I just tell it to go for it. I used to think it was abnormal and felt really guilty about giving in to being 'lazy', but no longer. I figure it is like putting money in the bank. Someday it'll pay out and with interest. Even the Handsome Hubby thinks it's a far, far better thing to send me to bed than to have to deal with a tired, cranky, ouchy, wife. :rolleyes:

 

So fluff up those pillows!

 

Warm hugs,


Jeannie McClelland

(Retired) ISN Director of Support Services

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I never used to sleep much at all but some days now I can sleep for ten hours or so which my hubby finds very strange because I was such an early bird! I just tell myself I must need it so don't get up until I wake up and I still manage to get to bed for 10. O'clock & sometimes even earlier.

Your body must need it so don't worry about sleeping that long.

Jensue

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KD8410,

 

What I would do for a normal night of good sleep without waking up, tossing and turning and making a trip to the throne (potty). My routine is I watch a bit of television until I get sleepy. Around 2:30 am, I drag my groggy self from the sofa to my bedroom. If I had a late dinner or snack, (10:00 p.m. is the latest) then I end up sitting with my back against my pillow, trying to fall asleep. This usually leads to waking up around 4:00 am with the pillow folded in half and my body in an abnormally crooked position. I can't say I remember having a night of refreshing rejuvenating sleep.

 

As far as too much sleep, if I'm on the throes of the flu or just feeling under the weather, I will have a sleeping-in day. Of course I have to let my dog out first, otherwise he will yelp and howl to wake me up.

 

If I could only have a good night's sleep.~~~~~~

 

Hugs,

Razz


Live well, Laugh often, Love much

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Hello KD

 

I clocked 19 out of 24 hours once, in the early disease stage. I still sleep a lot now and I don't try to fight it because it will only be worse the next day.

 

Fatigue is a major issue with sclero so we will sleep more, if we can.

 

Catching some zzzzz's is my favourite pastime.

 

Take care.

 

Amanda


Amanda Thorpe

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Hi KD ,

 

You can add Gareth to the record, too. He usually goes to bed each night between 7:30-8:00 and sleeps through till 6:30-7:00 am. I don't know how he does it......obviously overdraining fatigue from going all day. I know when he first came down with sclero, he also slept through the weekends during the days. He will come home from school and tell me that he wants to go to a game or activity that night but after dinnertime, I can just see him *crash*, he backs out of going and goes off to bed.

 

Take care, Everyone.

Margaret

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KD,
Ditto to everything that has been said. For you, it seems like a lot of sleep because it isn't normal for you. But obviously your body is telling you that's what it needs. Many studies have shown, that sleep is good for us. The lack of sleep can trigger inflammation and invite sickness. You might be interested in some of the studies on the ISN Sleep Disorders page.

Of course mention it to your doctor since it is not normal, but in the meantime -

Sweet Dreams,


Janey Willis

ISN Support Specialist

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Thanks for your replies all!

 

I wish so many of you could sleep more!

 

I am up before dawn most days, so now nodding off earlier and that seems to help, except I miss out on time with dear husband since he works all day. We'll get it figured out.

 

I mentioned this to the rheumatologist and he did not seemed concerned, what does interest me though is that the 8-10 hours per night actually started almost 2 years before my sclero symptoms..........hmmmm..........

 

I really appreciate hearing from all of you and will do my best to let the body rests when it want if you do the same :)

 

KD


Diffuse Scleroderma Diagnosed March 2009

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I am a feast or famine sleeper and cannot remember when I last had a 'normal' sleep pattern.

 

I might be up for 24-36 hours in an exhausted daze because pain will not let me sleep, which raises my blood pressure and has the ringing in my ears raise to new levels. (It sounds just like a high pitched alarm clock or fire alarm usually but when my blood pressure is up it gets louder and I get the 'wooshing' heartbeat tinnitis as well) When I do finally fall asleep because the exhaustion overpowers the pain, then I will sleep for 18 to 24 hours.

 

I have tried going to bed at a 'decent' hour, but I have never been the kind that falls asleep easily and can lay for hours in the dark trying not to look at the time on the alarm clock as it slowly ticks by. "If I fall asleep now I will get seven hours of sleep before I have to get up for my appointment" "Five hours, I can get five hours of sleep" "I can nap for two hours then go back to bed when I get home" It never fails that I finally fall asleep about twenty minutes before the alarm goes off. (I have an extremely annoying alarm clock that sounds like a rooster crowing since the ringing in my ears is the same tone as normal alarms so they never wake me) By the time I get back, I am so sore that sleep is impossible and I end up staying awake until late in the night once more, starting the cycle all over again.

 

I am of the belief that any sleep is good sleep, so if your body lets you slumber then I say go for it.

 

Warm hugs,

Penny

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Hello KD

 

My fatigue also predated my diagnosis by about 2 years. I had routine bloods done at the time and of course they showed nothing but "IT" was on it's way!

 

Amanda


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

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I have also found that with the pain that unless I take my amitryptyline and 2 antihistamines I won't be able to sleep. I try to "knock" myself out with these meds so I'm able to sleep. I'm still awakened in the middle of the night from the pain and have to hit myself with the pain meds but thankfully with the sleep aids I am still able to fall back asleep.

 

Warm hugs,

 

Peggy

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Last week was so exhausting at all fronts that I desperately needed rest. I think this weekend was one when I slept over 10 hours for two days.

 

I am recently diagnosed with severe sleep apnea and I rarely get deep sleep.

So this was a great change


Kind regards,

 

Kamlesh

 

 

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