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Guest Jude the Grouch

New Prognostic Indicator For Patients With IPF

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Guest Jude the Grouch
New Prognostic Indicator For Patients With Idiopathic Pulmonary Fibrosis. There may be a new way to predict mortality in patients with (IPF), a devastating disease that slowly petrifies the lungs. Most patients live only three years after diagnosis on average; however, some remain stable for many years, while for others, the disease progresses more rapidly. Medical News Today. 02/22/09. (Also see: Pulmonary Fibrosis)

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Hi Clementine,


First of all, the article talks about IPF - Idiopathic Pulmonary Function. We don't have that! Idiopathic means 'of unknown cause' and any of us with scleroderma that have Pulmonary Fibrosis will almost certainly be deemed to have 'pulmonary fibrosis secondary to systemic sclerosis'. It may sound like splitting hairs, but the difference is important because, as my pulmonologist told me, IPF doesn't respond as well, if at all, to immune system suppressants.


The predictor they are talking about in the summary is VO2 max which is a measurement they get when you do the exercise to maximum exertion test. That's done by getting on a treadmill or stationary bike hooked up to a mouthpiece and breathing tube (measures O2 'uptake'), a blood pressure cuff, and usually a finger oximeter to measure heart rate. They also do arterial blood gases a couple of times before, during, and after the test.


I did mine on a treadmill because even with the seat on the bike lowered the whole way, I was still too short to reach the pedals! :lol: This test also can give an indication of pulmonary hypertension, by the way.


At any rate, what I got out of the article was that in IPF, as in our sort of PF, an early diagnosis and prompt and appropriate treatment is crucial.


Hope this helps!


Big hugs,

Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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