• Announcements

    • Joelf

      Upgraded Sclero Forums!   05/18/2017

      Welcome to the Upgraded and Redesigned Sclero Forums!!   Our Forums are even better and more up to date than before.   Happy Posting to all our Members!!
Clementine

Our Sweet Peanut

29 posts in this topic

Hello All,

 

I found out that Peanut has been back at Northwestern and in the hospital, so please keep her in your thoughts. I hope that she is on her way home and doing better as I type this. If I hear anything else I will let you know.

 

Thanks,

Clementine

Share this post


Link to post
Share on other sites

Thanks Clem. I will keep her in my thoughts. I have often wondered why she never started posting again. I keep hoping with all my heart everything is OK.

 

Take care, Everyone.

Margaret

Share this post


Link to post
Share on other sites

Thanks for letting us know Clem. I was actually wondering about her just yesterday. She's still in my thoughts too!


Sending good wishes your way!

Share this post


Link to post
Share on other sites

Thanks for sharing that. I remember one post that she had her husband write after she got home. I have been thinking about her. I hope that she will be ok.

Nan

Share this post


Link to post
Share on other sites

Jen,

 

I had been wondering why she never started posting again. Hope everything is OK.

Thanks for keeping us posted.

 

Warm Wishes,

Becky


Diagnosed with Diffuse Systemic Scleroderma May 2005

Raynaud's, GI, esophagus, skin and lung involvement.

Share this post


Link to post
Share on other sites

Clem,

Thanks for keeping us posted about Lisa. She'll definitely be in our thoughts as she always is.

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Thank youfor letting us know! My thoughts are with her!

-Anderson

Share this post


Link to post
Share on other sites

I was wondering what had happened to her.

My thoughts are with her.

Share this post


Link to post
Share on other sites

I have also been wondering how she was getting on, my thoughts are with her.

 

Jensue

Share this post


Link to post
Share on other sites

I'll be putting Peanut inside of our Virtual Chain of Hope today.

 

Thank you, Clem.

 

Janet

Share this post


Link to post
Share on other sites

The good news, from Peanut's website, hopeandheart.org, is that she was moved out of ICU on Saturday, and will soon be going to a rehab institute before going back home.

 

Her voice is still weak from having the breathing tube for so long and she still can't drink any liquids. So please be sure to keep her in your thoughts!


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

Share this post


Link to post
Share on other sites

Thanks for the update.

I'm keeping Peanut in my thoughts too.

Cheryle

Share this post


Link to post
Share on other sites

I was so sorry to learn that Peanut has been back in the hospital! I hope she is continuing to improve!

 

Mary in Texas

Share this post


Link to post
Share on other sites

For those who don't know yet, anyone can go to Peanut's site and click on "Update" and follow the link for the most current update. And then, you can post a note for her. Her website is hopeandheart.org.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

Share this post


Link to post
Share on other sites

I just spoke to Lisa Volz (Peanut) and she is doing okay. It is very hard for her to talk but she is still a total joy to behold.

 

And of course, she is always up to something! She has started a new Facebook page and wanted to know if there was a page for Sclero Forums (or the International Scleroderma Network) as a Cause on Facebook. I told her Jordana has been after me to start one, but so far all I've managed is a personal profile on Facebook (the first step) and I still need to make our Cause page.

 

She will be moving soon so she has a lot of work to do. She sends her love to everyone! She still reads the forum from time to time.

 

Peanut, we all love you!


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

Share this post


Link to post
Share on other sites

Thanks Shelley for finding out how Peanut was doing. We only mentioned last night in chat that no one had heard anything.

 

Anyway Peanut would just like to wish you well and we miss you in the chat room.

 

Best Wishes

Jensue

Share this post


Link to post
Share on other sites

Thank you, Shelley!

 

Peanut, it was great to read that Shelley had spoken to you.

 

I hope that the move goes well for you and that you take great care to rest whenever the need arises. Having moved several times over the past few years, it isn't easy for those of us withour health issues.

 

I think of you often and hope you are able to find your way back...in time.


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

That's just wonderful news! I know everyone thinks about her often. She's a great person and an inspiration.

 

Peanut, here are some extra hugs to help you through the moving! I'm sure we'd all turn up in work clothes, lugging empty boxes, if we could.


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now