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Judy Devlin

From finger ulcer to amputation

29 posts in this topic

Hi Mary,

 

Thanks for the input. These shared experiences are comforting on many levels.

 

Anyways, I did mention the viagra treatment to my rheumatologist with not much feedback. Another new treatment that there has been some good results for finger ulcer healing is with a shot of Botox in the fingertips. My surgeon's been trying to get approval to try that for me also.

 

As I've snickered before, with these 'new' treatments we'll be able to go to the grave lookin' good.. :lol:

 

Take care,

Judy


There are over 1,000 patient and caregiver stories on the main Sclero.org site.

Warm regards,

 

Judy Devlin

ISN Archive Committee Chair

International Scleroderma Network

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Judy,

 

I don't have any experience in this area really, I just wanted to say the way that you are staying positive and focused on your treatment is very inspiring.

 

B x


Diagnosed diffuse systemic scleroderma December 2005 (on my 30th birthday, as if turning 30 wasn't enough?!)

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I use Revatio now, it's similar to viagara and it's working. I still get Raynaud's attacks but they are shorter duration and not quite as bad. No horrible infections this winter, just one little one that I dealt with using bandaids and neosporin and one finger that keeps threatening to ulcerate, but hasn't. So maybe the Revatio might help?

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Hello, I am very new to the forum but not so much to the disease. My mom was diagnosed around 2000, not really sure of the exact date. She has suffered tremendously with finger ulcers. One thing that has helped her has been nitroglycerin cream.

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