ladyhawke

Do you keep asking "how did I get this?"

21 posts in this topic

Someone mentioned looking for genetic causes of Sclero. Are you all not aware many articles state there is a high incidence of Crest and Sclero in people of Choctaw Indian descent and also Thai? I happen to know I have Choctaw heritage though my family are considered as members of Cherokee tribe. Ok we are mainly Cherokee, though one great greatgrandmother I found was member of Choctaw tribe. From what I read the Sclero/Crest gene was traced back to 5 original members of the Choctaw tribe. So this is the real downside of being Native American :unsure: at least in my opinion.

 

As far as silica goes. I've always worried myself because the last several years I used that pearl litter for the cat which is pure silica gel. But I'm pretty sure I was diagnosed with Crest before switching her to that litter, though before that was clumping litter which from what I'm reading from people here STILL contains silica. That said all the silica is out of my house now as my cat died on March 12th and I'm still just as sick. Actually worse pain than ever. Though no one said removing silica from the house would suddenly cure Sclero. :P

 

But what about the Benzine exposure thing? I've read that was suspected cause of Crest too. I know I have had Benzene exposure in a former workplace over a decade ago. Not to mention Benzene is in all sorts of things such as those numbing throat sprays I used to practically OD on and its used to "extract" grapefruit extract for so called natural supplements.

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Hi, Wohali. You make some interesting points. The article you refer to on the Choctaw studies can be found on our Causes of Scleroderma page.

What they are saying in the article is that all the Choctaw members in their study could be traced back to five specific Choctaw families in the 18th century, not the first five Choctaw members. In essence: "The findings, according to the authors, are specific to descendants of the five families, not to Choctaws in general, making the greater incidence of scleroderma among Choctaws a familial rather than ethnic phenomenon."

It is benzocaine rather than benzene that is in the throat sprays. I know benzene used to be used in the original decaffeination process for instant coffee products, but it isn't used any more.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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I have been thinking about how I got SS and wonder about this......

 

From age 11 to 19 I worked as lifeguard/swimming instructor etc. at our local public outdoor pool every summer.

 

Part of the filtration system for the water was a huge cement vat in the ground with many filters that very micro fine silica sand (dust) would stick to. The silica dust covered filters would gather contaminants as the water was pumped through it.

 

We had to replace this sand every few weeks (backwash), drain the vat and spray off the old wet dust. Then refill the vat and add new micro silica dust one coffee can at 5 minute increments till all 200 pounds were in there and gathered on the filters again. Of course this all took place in a small confined pump house with little ventilation................

 

Food for thought,

 

KD


Diffuse Scleroderma Diagnosed March 2009

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Hi,

 

When I first started having Raynaud's (RP) (and had no idea what it was until a few years ago) and joint pain I was in a no-animal household. I have now had between 3-7 cats for decades... yes and always done my litter duty. I must say it is quite dusty!

 

So since I had symptoms before cat, no connection for me.

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My father has worked 35 years in the oil industry. He has been exposed to a lot of chemicals but one that he thinks stands out is silica which was mixed with a grease which lined valves, I will have to find out which one and post back

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This is such an interesting topic. I know I didn't get this from kitty litter, I'm allergic to cats!

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