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Amanda Thorpe

Why is wearing undergarments making me feel sick?

28 posts in this topic

Hello All

 

Now I realise this is a weird one but it has become a real problem.

 

If I wear undergarments (a bra) that is tight around the ribcage after a period of hours it makes me feel sick so much so I have to remove it and slowly but surely the nausea goes away.

 

Now the undergarments are all well fitted so it's not because they're too small nevertheless I am going to buy some that too big just to alleviate the problem and will then just have to live with ones that don't quite fit.

 

I just wondered how it can make me feel sick, needless to say pre sclero I never had this issue.

 

Any ideas greatly appreciated!

 

Take care.

 

Amanda


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Amanda,

 

I am so sorry you are going through this... big warm hugs.

 

Maybe you can try getting one of those "sports bras" that people use in aerobics or running. They tend to distribute the pressure more evenly against the skin and are softer, so they might not trigger those feelings.

 

I know that I cannot wear any pants that "fit", because any pressure on my waist gets to me after a little bit, so I am constantly either tugging my pants up or risking flashing myself to anyone unlucky enough to be around.

 

I hope that you find relief soon.

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Hey Amanda,

 

I have a similar problem. The longer I wear a bra, the more short of breath I feel. By supper time the miserable thing has to come off. I'm on the well-endowed side and I think, as Penny suggested, that the distribution of the weight is what is doing it, plus maybe some restriction from the bra band. I have horrible deep ridges worn in my shoulders, so the weight isn't insignificant. I think that might cause an extra load on the muscles in the torso that are involved in breathing in - just a guess there.

 

Hugs!


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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I am very flat so I wear one of those stretchy bras that doesn't hurt. Just this year my main problem has been with pants. I have had to get elasticized pants because I can't stand tightness anywhere, especially my waist. It also hurts me sometimes to have any clothes on, I ache so much and they feel heavy.

Take care,

Nan

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Hi Amanda,

I have long had that problem. Quiet sometime ago I went to the stretchy sports bras with wide straps. It isn't that I have anything to hold up. Then I started wearing camisoles instead of bras. I stay home about 99% of the time so that makes a difference and on the rare occasion that I am going out and it matters I wear one. Because I am always cold when other people are comfortable I usually wear a jacket which also helps when not wearing a bra. I can't stand tight pants either. I see people out with clothes so tight I wonder how they do it.

I blame my problems on genetics. I'm just like my mom. I have heard her often say, "It just cuts me in two." I say "me too."

Maybe I am just a "liberated" female so don't need a bra. :lol:

Betty

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Amanda - I have wanted to post this subject for a long time. Thank you for bringing it up. I have ended up wearing a size smaller sleeveless tank instead of a bra. Wearing a bra gives me such bad reflux as well as spasms in my chest. I can't even wear a sports bra. Pants are the same. No belts or buckles for me. It really is difficult and embarrassing at times.My husband says I look fine but I sure don't feel like the way I used to! Pretty bras and panties. Sigh! As my husband says to me (often) "it sure beats the alternative". Hugs, Ann

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Amanda,

 

I have the same problem. I have this pain in my lower right side of my ribs and back. I notice after a while it gets worse when my bra is on. I wear a 36 DD, so I am sure that does not help. Loose sport bra helps but does not make that much of difference. I wish the doctor would figure out the pain. It also goes through the middle of my back at times. I have had my gallbladder out three years ago. One doctor told me it was referral pain from my bladder. Another doctor said it was muscle pain. A kidney doctor a couple years ago said he thought it was fibromyalgia pain, I did not know I had sclero then. He did not do much testing. I have always felt like it was kidney pain. I do know wearing a bra makes it worse.

 

I have been thinking that maybe I have Raynaud's in my kidneys. I have noticed after I drink something cold , the pains happens. I ask my primary doctor and he stated he has never heard of that before..

 

Who knows. Maybe someone else has more information.

 

Hugs,

Nina Lynn

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Hello All

 

Thanks for the replies, I had no idea how common this was!

 

I can't wear anything tight around the waist either as that also makes me feel sick. I wonder if it is making the gastric issue worse as this is now a problem I have although nowhere near as severe as a lot here.

 

Although I am housebound 99% of the time as well, when people come over or I go out, to not wear anything would be immodest. I did think of a sports bra but the last one I had made me look torpedo like and whilst the look works for a certain pop star it's not a good look for the suburban housewife.

 

So I have now aquired new ones and they're comfortable so far. Oh dear I'm only 40 and already into "comfortable" lingerie. It started with comfortable shoes now it's bras, bed socks, what next huge white cotton undies that you could parachute in? :lol:

 

Take care

 

Amanda


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Amanda,

I use "hook and eye" extensions on my bras when they start to get tight. Which is everyday!

 

Christy


Love makes the world go around!

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Hi Amanda,

I'm glad you posted this because I never related the discomfort that I get around the bra area with scleroderma. I have it right now. Many of nights, and I do notice it mostly after I eat and sit in my comfy chair, that I get very uncomfortable around the bottom of the bra area. It hurts inside of me. Now I'm going to pay more attention to this and bring it to the attention of my doctor when I go back.


Gigi08

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I also have severe fi-bra-myalgia. Like Betty, I have bailed out on bras by using camisoles nearly all the time when I have to go out in public.

 

I have some of the softest, professionally-fit bras for those rare occasions when nothing else will suffice. Most of us make the mistake of wearing totally the wrong bra size. Usually we'll memorize in high school that we're a 32-B, for example, and then find out when we're 50 that we've become a 44-C but never updated our wardrobe accordingly. Even a 10 pound gain or loss can affect bra size. And from personal experience, I can attest that the wrong undergarments can cause excruciating pain, even acid reflux and worsening any other pre-existing pain, especially in the lower back and neck.

 

Back in the 70's we had the big bra burnings, remember? I am Woman, watch me roar! Well, we probably had the right idea then. Camisoles with built-in soft bras (even those, properly fit or one size larger) have saved the day for me. Now I see they are marketing camisoles with support wires built in. I avoid those like the plague.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Okay, I admit it, the moment the front door closes the bra comes off. My husband finds it amazing, because my arms will disappear into the sleeves, a little wiggle and then back out the sleeves and I will reach in the neck opening of my shirt and pull it out the bra... still clasped in the back.

 

Like many who have posted, I am 'top' heavy (DD) and it never occured to me that the bra could be adding my my gastric woes when out and about! I know that anything touching my waist will cause certain pain, but never even thought about the pressure on my ribcage.

 

I sorely miss the fashions of a decade ago with the waistless dresses that flowed to mid shin and actually do have kaftans and muu-muus' that I wear most of the time for comfort at home, but I wish there was something comfortable I could wear when out and about that did not scream "crazy aunt".

 

I am also guilty of wearing slacks with wide comfortable stretchy gathers at the waist that when I sit (and no one is looking) I pull up to my ribs to keep all pressure off my stomach.

 

I do have one question...

 

What does everyone do about seatbelts?

 

I cram my arms in much of the time under them with me in an attempt to keep the pressure off my stomach and chest but I know that can't be all that safe. Does anyone have any tricks to make them more tolerable?

 

Warm hugs,

Penny

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Hi Penny,

 

Doing a little lateral thinking, I did a web search on "pregnancy and seatbelts" (some days I feel like I must be and probably look that way too) and found and article on the National Highway Traffic Safety Administration site. They recommend wearing the bottom half of the seatbelt tucked below the belly so it rests on the hips/pelvis. I've found you can do this more easily if you sit up nice and straight. (Everybody hear their mothers reminding them about their posture??)

 

Big hugs,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Jeannie,

 

Thanks so much for the tip, I am definitely going to try it out... tonight as a matter of fact as I head off on a 300+ mile trip for the weekend. Since I make these trips about once a month it could be a great relief!

 

;) I definitely had the "posture makes perfect" flashback, :lol: .

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For the seatbelt, I bought a gadget at an auto shop which attaches to the seat belt to ease the strain. It works beautifully! I don't remember what it is called, but if you ask for a seat belt adjustment device you wouldn't be too far off track. They are very cheap, just a small piece of plastic. And they are a heavenly relief from pressure on the stomach and chest!

 

Also, lacking that, I use a cotton handkerchief (anything about that size would work) to tie the seat belt far off to the side. Using that technique, be sure not to tie a tight knot, I just do a single tie and with the right fabric, it will hold. However, I don't know if this is legal, all I know is that it makes the seat belt bearable.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Just had a thought, How about sewing ribbon, to the hook &eye part, cross ribbons and bring to the front, tie as loose or tight as you like and loosen when required. I am going to try this, with old fav: see if it works.

 

Lynne


Take care.

Lynne

 

A trouble shared is halved, a joy shared is doubled

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Good idea, Lynne. You could try it with safety pins first to save that sewing just in case.

 

I will join the club and admit that I go without a bra most of the time unless I go out. I have also shifted to a slightly larger size back, no wires with broad, soft straps. I tried the sport bras, but found them a real struggle to get into, not to mention that ones in my size are a rarity. I have found that a deep v-neck looks a lot better without a bra, giving a slightly more normal looking pseudo-cleavage than a higher neck tee shirt.

 

Penny, I have already wandered into 'crazy aunt' territory and I don't mind a bit. I always walked a bit south of fashion in my youth and I am still bucking the trends. I wear what I like with extreme satisfaction.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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OK, you all are not allowed to tell anyone else this, but in a crazed search for a bra that fits, I actually took a bra-making class. The one thing I learned is that most of us chose a cup size that's too small and that messes up how and where the weight of the breast is carried. Another good tip is to look for bras with the straps set closer to the middle in the back. They carry the weight better and have the advantage of keeping the straps on the shoulders instead of continually trying to slide down the arm.

 

Lynne's ribbon suggestion is a good one and could be very pretty. I think I'd remove the hooks and put an intermediate piece of elastic between the ribbon and the bra. Grosgrain ribbon doesn't tend to fold up, but it's not as soft as satin. The best ribbon would probably be the heavier double-faced satin (shiny satin on both sides).

 

Lest you think I'm totally crazy, I do buy most of my bras (I like the seamless cups and you can't make those at home), but modify them to suit and as necessary.

 

Big hugs,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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On the "how do they do that" TV channel I watched one on bra making. It was a multistep process with lots of technology involved. I used to make most of my clothes but I never tackled bras. I have some camisoles with a built in bra. Sometimes I wear them when I go out. They are more comfortable than the bras but none of these actually lifts me up. In the 70s when bra burning was a fad I never did mine but recently I just leave them in the drawer. Don't waste a match.

Betty

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I asked Google about those adjusters and there are a lot of them. I looked hoping to find information regarding the safety of these gadgets that I seem to remember from way back. I didn't find it. Safety is a prime consideration.

 

Once we were driving on an interstate on black ice. It was early AM and the traffic was light. A loaded tanker truck in back of us approached fast. He could not change lanes because of the ice so ran right over us from the rear.

 

Once, again on an interstate it had been raining making the road slick. We were going east. A car going west lost control, spun right across the median and headlong right into us.

 

Both instances the autos were totally wrecked.

 

In both instances the seat belts left strong imprints on us as we had hit them very hard. Both instances I would hate to think what if the seat belt wasn't there. But seat belts have to be worn properly to do this.

Fortunately seat belts cause me only minor irritation. The one that goes up over my shoulder rubs on my neck.

 

So, especially if I will be in the car long I wear a shirt that has a good collar on it. I put the belt under my collar to help with the rubs.

 

Betty

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I think I am definitely in the minority here! I actually feel more comfortable wearing a bra -- I even wear a soft bra at night time. I am fairly well endowed and used to find most bras really uncomfortable and had the 'coat hanger shoulder syndrome' -- those deep welts where the bra straps dig in. My bra wearing and comfort was transformed when I went to a specialist bra shop and got measured and fitted. I went in wearing a 38D and came out wearing a 34E. I do find that my breasts are changing all the time (think menopause is like puberty) and I need to go for refitting every few months. Now I'm properly supported, I don't have the shoulder welts or the aching upper back and the 'the girls', as Amanda so wonderfully calls them, have moved up north. I can't stand tight waistbands though, they do make me feel nauseated. My pride draws the line at elasticated waistbands for work wear, but the minute I'm home I'm into one of my many pairs of elasticated waist jersey trousers.

 

Lizzie

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Like most of you I can't stand to have anything tight around my waist but I won't wear elasticated waists so I generally buy to fit my waist so that trousers or skirts are comfy. As far as bras are concerned I was properly fitted in a specialist shop but have found that sometimes I feel as if I have a very tight band around me which seems to affect how I breathe. When this happens I just simply can't wait to get rid of my bra and like many of you I would never go without a bra while out and about.

 

Jensue

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Hello All

I hope you all had a great holiday!

It's amazing how many women wear the wrong bra size, apparantley here it's 70%! Well I ain't one of them, as soon as I discovered that if you get measured the sales assistant will then bring all the bras to you whilst you sit comfortably in the changing room, I have been measured more times than I can count! laugh.gif

Hey, someone should design the "sclero bra!" It would be comfortable yet pretty, adjustable yet supportive. Any takers?

Take care

Amanda


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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My sister had "back problems". She wore a tight long line bra. They have a wide elastic band that went to below the rib cage. Without it her back pain was worse. I tried them and it made my back pain far worse.
Betty

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