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Amanda Thorpe

Why is wearing undergarments making me feel sick?

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For the seatbelt, I bought a gadget at an auto shop which attaches to the seat belt to ease the strain. It works beautifully! I don't remember what it is called, but if you ask for a seat belt adjustment device you wouldn't be too far off track. They are very cheap, just a small piece of plastic. And they are a heavenly relief from pressure on the stomach and chest!

 

Also, lacking that, I use a cotton handkerchief (anything about that size would work) to tie the seat belt far off to the side. Using that technique, be sure not to tie a tight knot, I just do a single tie and with the right fabric, it will hold. However, I don't know if this is legal, all I know is that it makes the seat belt bearable.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Just had a thought, How about sewing ribbon, to the hook &eye part, cross ribbons and bring to the front, tie as loose or tight as you like and loosen when required. I am going to try this, with old fav: see if it works.

 

Lynne


Take care.

Lynne

 

A trouble shared is halved, a joy shared is doubled

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Good idea, Lynne. You could try it with safety pins first to save that sewing just in case.

 

I will join the club and admit that I go without a bra most of the time unless I go out. I have also shifted to a slightly larger size back, no wires with broad, soft straps. I tried the sport bras, but found them a real struggle to get into, not to mention that ones in my size are a rarity. I have found that a deep v-neck looks a lot better without a bra, giving a slightly more normal looking pseudo-cleavage than a higher neck tee shirt.

 

Penny, I have already wandered into 'crazy aunt' territory and I don't mind a bit. I always walked a bit south of fashion in my youth and I am still bucking the trends. I wear what I like with extreme satisfaction.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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OK, you all are not allowed to tell anyone else this, but in a crazed search for a bra that fits, I actually took a bra-making class. The one thing I learned is that most of us chose a cup size that's too small and that messes up how and where the weight of the breast is carried. Another good tip is to look for bras with the straps set closer to the middle in the back. They carry the weight better and have the advantage of keeping the straps on the shoulders instead of continually trying to slide down the arm.

 

Lynne's ribbon suggestion is a good one and could be very pretty. I think I'd remove the hooks and put an intermediate piece of elastic between the ribbon and the bra. Grosgrain ribbon doesn't tend to fold up, but it's not as soft as satin. The best ribbon would probably be the heavier double-faced satin (shiny satin on both sides).

 

Lest you think I'm totally crazy, I do buy most of my bras (I like the seamless cups and you can't make those at home), but modify them to suit and as necessary.

 

Big hugs,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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On the "how do they do that" TV channel I watched one on bra making. It was a multistep process with lots of technology involved. I used to make most of my clothes but I never tackled bras. I have some camisoles with a built in bra. Sometimes I wear them when I go out. They are more comfortable than the bras but none of these actually lifts me up. In the 70s when bra burning was a fad I never did mine but recently I just leave them in the drawer. Don't waste a match.

Betty

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I asked Google about those adjusters and there are a lot of them. I looked hoping to find information regarding the safety of these gadgets that I seem to remember from way back. I didn't find it. Safety is a prime consideration.

 

Once we were driving on an interstate on black ice. It was early AM and the traffic was light. A loaded tanker truck in back of us approached fast. He could not change lanes because of the ice so ran right over us from the rear.

 

Once, again on an interstate it had been raining making the road slick. We were going east. A car going west lost control, spun right across the median and headlong right into us.

 

Both instances the autos were totally wrecked.

 

In both instances the seat belts left strong imprints on us as we had hit them very hard. Both instances I would hate to think what if the seat belt wasn't there. But seat belts have to be worn properly to do this.

Fortunately seat belts cause me only minor irritation. The one that goes up over my shoulder rubs on my neck.

 

So, especially if I will be in the car long I wear a shirt that has a good collar on it. I put the belt under my collar to help with the rubs.

 

Betty

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I think I am definitely in the minority here! I actually feel more comfortable wearing a bra -- I even wear a soft bra at night time. I am fairly well endowed and used to find most bras really uncomfortable and had the 'coat hanger shoulder syndrome' -- those deep welts where the bra straps dig in. My bra wearing and comfort was transformed when I went to a specialist bra shop and got measured and fitted. I went in wearing a 38D and came out wearing a 34E. I do find that my breasts are changing all the time (think menopause is like puberty) and I need to go for refitting every few months. Now I'm properly supported, I don't have the shoulder welts or the aching upper back and the 'the girls', as Amanda so wonderfully calls them, have moved up north. I can't stand tight waistbands though, they do make me feel nauseated. My pride draws the line at elasticated waistbands for work wear, but the minute I'm home I'm into one of my many pairs of elasticated waist jersey trousers.

 

Lizzie

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Like most of you I can't stand to have anything tight around my waist but I won't wear elasticated waists so I generally buy to fit my waist so that trousers or skirts are comfy. As far as bras are concerned I was properly fitted in a specialist shop but have found that sometimes I feel as if I have a very tight band around me which seems to affect how I breathe. When this happens I just simply can't wait to get rid of my bra and like many of you I would never go without a bra while out and about.

 

Jensue

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Hello All

I hope you all had a great holiday!

It's amazing how many women wear the wrong bra size, apparantley here it's 70%! Well I ain't one of them, as soon as I discovered that if you get measured the sales assistant will then bring all the bras to you whilst you sit comfortably in the changing room, I have been measured more times than I can count! laugh.gif

Hey, someone should design the "sclero bra!" It would be comfortable yet pretty, adjustable yet supportive. Any takers?

Take care

Amanda


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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My sister had "back problems". She wore a tight long line bra. They have a wide elastic band that went to below the rib cage. Without it her back pain was worse. I tried them and it made my back pain far worse.
Betty

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Dear Amanda Thorpe,

 

I understand what you're going though; I usually wear a sports bra so I don't have that feeling. 

Usually I have to wear bigger then my size bras but that doesn't help my figure at all because I'm a big busted women.

When I first needed to wear a bra it hurt a lot and I was constantly looking green  and throwing tantrums  

saying stuff like " can I please take this death trap off '' or, '' this is worse the corset"

and believe me it was.

 

P.S. I have worn a corset and it hurts.

Hope you get well.

 

Anastasha2         

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Hello Anastasha2

 

Welcome to the forums and thank you for your post.

 

Unfortunately I have not found a solution to this problem other than a rather impractical one. Last time I travelled to my specialist in London I had my husband undo my bra once in the car to try and give the "girls" as much chance as possible to stay in the bra. I also wear a cami type top to aid this and just sit still. When we arrive at the rest stop my husband has to re-hook me so we can get out of the car, the only problem is that I have to surreptitiously scoop the "girls" back into the bra! When we visit the rest stop on the return journey the bra comes off and all I can say it thank goodness for the cami top! 

 

I have thought about a longline bra and if I can find one in my size may well do. At the moment I have been going up a band size but this creates another problem, the impact of which I underestimated, the "girls" trying to escaping from the bottom of the bra! Not cool!

 

One day I will remember to actually ask my specialist about this.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Amanda, here in the States, there is a bra that you step into, there are NO wires or hooks to fool with!  I have found it difficult to wear "regular" bras for a while now and have been quite thrilled with this bra.

 

Hopefully you can find it online or something similar in your neck of the woods. It's like a sports bra, but has more support. Good luck with your search!

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