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cemile

Skin tearing

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I have diffuse SSc with significant skin tightening. Recently, I have noticed shallow thin scabs on the backs of my thighs, which I think is from the skin tearing when I sit down or get up. Anyone else have this problem or suggestions for helping it? I am putting lotion on several times a day, but the skin is still very tender.

 

Thanks,

Cemile

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Hello, Cemile

 

Welcome to the ISN Sclero Forums. I am sorry to hear about your problems with skin tearing, but I am glad you found us. I don't personally have any experience with this problem, but hopefully someone else will be able to comment. It may be a little quiet here this weekend so please be patient.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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Hello Cemile

 

Welcome to the forum, in my opinion the best place to be with sclero.

 

I also have diffuse SSc and tight skin on the thighs and calves. I haven't noticed what you mention but I have noticed that the skin will scab at any given opportunity, say after an earnest scratch. At the time no difference but a day later... scab. It's just so attractive! :lol:

 

Of course due to slow healing any such mark hangs around for weeks, in fact I have one on my ankle that's been around for approx 4 months, I might start charging it rent it's squatted long enough to qualify.

 

It might be a good idea to ask your doctor as they might be able to recommend a better cream/lotion than the one you're using.

 

I hope this helps and look forward to more post from you.

 

Take care

 

Amanda


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Cemile,

 

You might want to check with your primary care doctor first of all. They should be able to tell what is causing the scabs and/or refer you to whatever specialist you might need (dermatologist or rheumatologist). I'd tend to think that shallow thin scabs might be more from scratching or being cut by something (cracked vinyl or wood or rough edges on any furniture?), but you just won't know until you have it examined by an expert.

 

It would be important to find the cause, whatever it is, as you'd want to protect the area from developing infection, which can be very difficult to treat in areas of skin tightening due to poor circulation.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hi, Cemile,

 

First off, welcome to the Forum.

 

I do not have the tight skin issues but do have skin that likes to take a good mark at a moments notice and keep it as a momento. Sometimes I wonder if I look like a moving accident since I always seem to have small scabs or pink and red scars showing where a scab recently vacated... even something as simple as an IV will leave a mark as identifiable as a tattoo for months and months.

 

Like Shelley I would suggest seeing your doctor and hopefully they will have suggestions as to creams that will penetrate deeper and offer you some comfort.

 

I do know that I have foregone fashion and style for comfort in many ways. Scratchy fabrics on sofas and chairs have been covered with smooth soft cloths (Egyptian cotton bedsheets are drafted into service for this usually, since they wash well) because any 'scratchy' fabric will leave my skin abraded slightly and I then deal with tiny pinprick scabs that itch like crazy.

 

Waxing my legs is a thing of the past, as well as using regular razors. When I do need to shave (not as often as I used to -- my hair seems to have stopped growing, a small plus) I use a battery powered wet shaver so no nicking is done and the water helps prevent razor burn.

 

I am lucky that I can use fabric softeners, so I use both liquid and sheet forms along with those dryer balls that fluff your clothing in the dryer, anything to soften the fabric on my skin. I do have detergent sensitivities, but found one that I do not react to, I did not even realize that my detergent was bothering me until one day I ran out and picked up another on sale and noticed a huge difference.

 

I hope that you get to the bottom of your fragile skin issue soon and are well on the road to comfort.

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Hi Cemile,

 

I just wanted to pop in and add my welcome to the Forum.

 

My skin doesn't tear easily but any injury to it does take forever to heal, so I'm pretty careful when I'm working outside in the garden, etc. Fortunately I'm at the age where shorts are a long-distant memory and live in a place where nearly everyone over the age of 15 wears long sleeves and a sun hat all summer long! :)

 

I hope your doctor can help you out with this; it sounds pretty uncomfortable.


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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