Margaret

Happy Dance time

12 posts in this topic

Hi, Everyone.

 

I found out yesterday that Gareth's SED rate is 8 -- as in eight!!! It hasn't been that low since I started keeping his records 3 years ago! To think, also, it has been as high as 98 and was usually fluctuating between 30-40. He's been on 800 mg of Vitamin D daily for almost 2 months and I am wondering about the connection there.

 

Now, if we can just find the cause of his *heart attacks*, we'll be doing good.

 

 

Take care, Everyone.

Margaret

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Margaret,

That's such great news!!!!! Thanks for sharing it with us.

 

Here's a congratulatory hug for Gareth (((((((((((((((hug))))))))))))))


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Hi Margaret,

 

That's absolutely wonderful! Please give Gareth an extra warm hug and keep doing what you're doing as obviously, something is working to quell the inflammation.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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A Huge CONGRATULATIONS! I couldn't be happier for you!!! Enjoy, Enjoy, Enjoy!

 

Warm hugs,

 

Peggy

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Margaret,

 

That is some wonderful news! {{{{{{hugs warm hugs to you and Gareth}}}}}}

 

I am definately doing a happy dance here for our Gareth, complete with can-can skirt and a chihuahua racing in circles with castanets.

 

One major battle won and with this victory, finding the cause of his "heart attacks" will hopefully be done quickly so he can have relief.

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Hi Margaret!

 

How wonderful is that?! I'll bet all of Gareth's doctors are nearly as pleased as you must be. That's truly tremendous.

 

Big hugs to you both,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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That's great news Margaret...so glad to hear it!!


Sending good wishes your way!

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Margaret,

That is great news!

Could Gareth's daily Vitamin D really be the key? I'm trying that!

Thanks for your info!!!

Hope heart issuse resolve quickly!

((hugs)to both of you))

Becky


Diagnosed with Diffuse Systemic Scleroderma May 2005

Raynaud's, GI, esophagus, skin and lung involvement.

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Fantastic Margaret! I am so glad he's feeling better!

 

Where do you buy the Vitamin D at? Is it a special kind?

 

As of Tuesday my rheumatologist took me off my organic super duper multivitamins because they said "Immune Support" on them. I bought a different kind from the supermarket and was interested to see the supermarket brand has over double the amount of D than the previous.

 

KD


Diffuse Scleroderma Diagnosed March 2009

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Hi KD,

 

As I understand it, Vitamin D supplementation should only be done under the direction of a physician, particularly in scleroderma patients. They can easily run a blood test to see if you have a deficiency, or not. If you do, they can advise the proper dose and keep an eye on things, to make sure you don't reach toxic levels and also to advise an increase if the dose they recommend doesn't bring you back up into normal range.

 

Also, if you are not deficient, then adding D probably isn't going to help at all.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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