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WestCoast1

How many people travel regularly?

18 posts in this topic

Hi Sclero Family~

 

I had a silly question: I don't want to forget ANYTHING while traveling. The last time I went away for a few days, I became very sick. (stomach issues, major fatigue, headache, body pain, nausea) I guess that the time change, food change and stress exasperated my illness.

 

I know that I need to bring my medication, but what else can I bring to keep me from getting sick, lower my stress and keep me on more of a typical schedule?

 

Thanks for your help. I am sure that many of you travel often and have helpful tips that I can try.

 

hugs~

erin


*WestCoast*

 

********

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Hi Erin - traveling is always a bit stressful and when I do, I line up all the meds and comfort things that will help to make the changes in my routine go smoother. For instance, I take the meds my doctor gave me for lower GI problems (it's a prescription). I also have something to take for nausea. Where are you going and for how long? I take my pillow and this may sound silly, but I have this little "white noise" machine. I use it when I need to block out noise. I also try and take my meds at the usual time. The time change thing can pose a problem and that can make my stomach not a happy camper. If I go on a cruise I request low sodium meals. When I book a hotel I request a quiet room. I really just try and make the experience as comfortable as I can. I'm not always successful but at least I got out and joined the human race! Hope this was helpful. Hugs, Ann

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The thing I tend to do is cram too much activity in. Lately I have been trying to schedule in the same naps I have at home. Even if I don't take them, I am keeping some time 'unavailable' for fatiguing activities. It is so easy to overdo it otherwise. Also make sure to wear and take comfortable shoes.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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Hi Erin,

 

I always take my own pillow, plus warm hat, gloves, and socks. It seems like everyone else's comfort level is a lot cooler than mine. I sometimes need to wear the wooly gear to bed because I don't sleep well if I'm cold. Spending the night curled up in the fetal position trying to conserve warmth means a sore and achy day 'tomorrow'. ;)

 

The other thing I do is carry travel-sized eye drops, saline spray, mouth-wetting solution, and moisturizer for face and hand in my handbag, especially if I'm flying because the air in the planes seems to be ultra-dry.

 

Last, but far from least, I take my little TENS machine for pain and a put deep relaxation thingy on the I-pod.

 

Bon voyage, wherever you are going!


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Erin,

Depending on how long I will be traveling, and the mode of transportation (flying vs driving) I try and take lots of fluids and snacks that I like and can get down. This is easier if you are driving, but even if you are flying you can take some snacks and food that you like and is easy for you to eat, then when you arrive at your destination go to a market or health food store and get what you need to stay hydrated and fed. Most hotels now have microwaves and fridges. If you are driving take an ice chest.

 

I also agree with what everyone else wrote. Think about the things that make you the most comfortable and then see if you can bring them along, or get them when you get there. Most of all, feel free to say "no" when too many things get thrown into your schedule.

 

Jill

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Wow, thanks for all of the tips! I am making a list right now.

 

I will be driving, then flying, then driving. Once there, I am staying at a dorm and doing all day activities with kids for 3 days....hot weather and no breaks from what I hear. I am nervous, but excited all at the same time.

 

So far on my list I have;

meds, pillow and low sodium foods (thanks Ann)

comfy shoes (thanks jefa)

hat, gloves, socks, eye drops & moisturizer (thanks Jeannie)

snacks and stay hydrated (thanks Jill)

 

your the best~

erin


*WestCoast*

 

********

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Erin,

 

I just took my 16 year old to a theme park for spring break. I took with me all that has been mentioned, but I did have to stop and get some disinfectant. I wanted to take a long bath after the busy days. Even though we were in a nice hotel and I felt better if I clean the bath tub and wipe down the room. I get sick easy, so I wanted to de-germ the place. I also make sure I carry hand wipes for when I could not wash my hands.

Since you are flying make sure you keep your meds in your purse or something that you carry on the plane in case your luggage gets loss. I seem to stress getting ready for vacation because I have a fear of getting sick, but I have done well in the past.

 

I hope you have a wonderful time!!

Hugs,

Nina Lynn

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Hello Erin

 

I hope you have a great time when you go!

 

I know pillow had already been mentioned and comfy shoes, what about warm socks and a pillow for your feet? If we go by car for a journey longer than 10 minutes I take a beany cushion that goes on the floor, shoes come off and feet sink into cushion, of course I am not driving!

 

Don't forget body lotion!

 

Take care.

 

Amanda


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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i always need a heating pad because it's too hard to try to stay warm in someone else's house or in a hotel room when you are sharing it with someone else.

 

 

Have fun!

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I take my own tea cup and tea bags. Then I bring coffee and No.2 filters for the hubby. I use to be really picky about my coffee. Can't stand hotel coffee, but no that I'm a tea drinker, it's always nice to start the day with a tasty cup of tea. The tea cup is because I hate drinker from Styrofoam.

 

Have a marvelous trip.

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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When traveling I always remember to pack all my meds, including extra pain meds, plus stuff for upset stomach from eating foods I don't normally eat. Plus always take a jacket on the plane because many times they keep it as cold as a meat locker once its in the air. Make sure to take a hat and gloves as you never know how the weather will turn out plus an extra sweater, warm shoes and socks. I also try to take my own snacks and tea bags as you never know what kind of weird food they are going to have at the airports and many times its not stuff that's easy on the stomach. I'm preparing to travel myself soon so I gotta remember to pack everything I'll need.

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Okay, my list is getting longer, but I will be gone for a full 5 days and really appreciate you all helping me be prepared.

 

So here is the rest of my list...so far:

 

disinfectant (thanks Nina Lynn...great idea)

warm socks (thanks Amanda)

heating pad...a must for sure! (thanks Clementine)

tea bags/coffee rations :-) (thanks Janey)

jacket for plane and extra pain meds (thanks Wohali)

 

Thank you, thank you, thank you!

 

Hugs~

erin


*WestCoast*

 

********

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Erin,

 

Your head must be spinning with all the different helpful hints you have been getting and here I am about to pile a few more on :D

 

I have a very sensitive stomach, and because of that I take extra care when traveling. While water is pretty safe everywhere you go, some cities use chlorine, some use chloramines (basically a break down product of chlorine), some add fluoride and with the differing sources of water there can be trace amounts of saline, copper and other dissolved minerals, all in safe amounts yet different from what you are used to. To be safe, I drink bottled distilled water when traveling and even use it to rinse my toothbrush.

 

You can get preservative free artificial tears in single use tubes that are easy to slip into pockets or a purse and lighten the load when you are sightseeing.

 

If you have trouble sleeping in strange beds, bring your own pillowcase. It is small and easy to fit in luggage but makes a surprisingly big difference because the familiar feel and scent can be just enough to help you get some rest.

 

Bring your own soap, many of the soaps that are given in hotel rooms can be drying.

 

You can get a small collapsible three-legged stool (you can find it with the camping supplies in most large stores), they have a sling so they are easy to carry and when you need to stop and sit down you can do so anywhere at a moment's notice.

 

My biggest suggestion is to enjoy yourself and build some beautiful memories!

 

Warm hugs,

 

Penny

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Wow! This was a good subject for me, too. I'm going to a family reunion in July and I've been worrying about it. These suggestions are wonderful! Thanks to all you fellow travelers.

 

Mary in Texas

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Hi everyone!

 

I'm new to these boards, and have read many of your postings and blogs, many of which show not only your strength, individually and collectively, but your bravery in coping with new health situations on what may be a regular basis! I'm sure to learn many good things from everyone here. :-)

 

Because I love to travel so often, and am often required to because of my work and family, both nationally and internationally, I wondered how many others travel regularly, and if they have experienced any difficulties traveling as a result of their health situation? Or, if you've had to stop traveling because of health concerns, or the issue of staying close to hospitals, etc?

 

Saturday hugs to everyone!

Elizabeth

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Hi Elizabeth,

 

I travel regularly, both by plane and car.

 

Because I use supplemental oxygen, I obtained a portable oxygen concentrator (POC), with the help of my pulmonologist. There were already a few airlines that would accept these on board (with a doctor's note) and as of June of this year, the FAA has mandated that any airline with flights originating or terminating in the USA must allow FAA approved makes of POC's. For ground travel, I've also switched from liquid oxygen to an in-home concentrator with a compressor system to fill small take-along tanks. I can put the whole system into my car and take it to places where having either liquid oxygen or tank deliveries is problematical.

 

None of the medications that I take require refrigeration, so that's not an issue. I do have to have monthly blood draws done and I try to schedule my trips to accommodate those. I carry a prescription and order sheet for the blood draw, just in case I'm late getting back for the next scheduled one.

 

The other thing that I do is check and see if there is a scleroderma specialist in the area I'm going to and/or ask my local doctors if they can recommend someone. I always carry a complete list of medications with both brand and medical names and note against each what it is for. I also carry a complete list of my doctors with emergency contact numbers.

 

One thing that is important is to talk with your medical insurance carrier and see if there is any problem with coverage anywhere along your planned itinerary. If there is, supplemental insurance is a good idea. For overseas, usually an embassy or consulate can give you some advice or at least a contact number for someone who can steer you to an insurance carrier that is accepted in that country.

 

I think the only thing that's going to stop me traveling would be my husband taking the wheels off the car and hiding my passport! ;)

 

Bon voyage!


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Hi,

 

I travel regularly. I've been to New Zealand twice, and Mexico once in the past 6 months. I line up doctors ahead of time in the area I am going to. I buy international health care insurance. I also take every conceivable pill/med I might need. In addition I take pillow, gloves, scarfs, cuddle duds, anything that I can think of I may need to be comfortable and warm. The one thing I will start bringing that I didn't before is a mask for the plane.

 

I have fallen in love with an alternative doctor in NZ. I may have to start writing off expenses just to see her!


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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