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How many people travel regularly?

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Hi everyone!


I'm new to these boards, and have read many of your postings and blogs, many of which show not only your strength, individually and collectively, but your bravery in coping with new health situations on what may be a regular basis! I'm sure to learn many good things from everyone here. :-)


Because I love to travel so often, and am often required to because of my work and family, both nationally and internationally, I wondered how many others travel regularly, and if they have experienced any difficulties traveling as a result of their health situation? Or, if you've had to stop traveling because of health concerns, or the issue of staying close to hospitals, etc?


Saturday hugs to everyone!


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Hi Elizabeth,


I travel regularly, both by plane and car.


Because I use supplemental oxygen, I obtained a portable oxygen concentrator (POC), with the help of my pulmonologist. There were already a few airlines that would accept these on board (with a doctor's note) and as of June of this year, the FAA has mandated that any airline with flights originating or terminating in the USA must allow FAA approved makes of POC's. For ground travel, I've also switched from liquid oxygen to an in-home concentrator with a compressor system to fill small take-along tanks. I can put the whole system into my car and take it to places where having either liquid oxygen or tank deliveries is problematical.


None of the medications that I take require refrigeration, so that's not an issue. I do have to have monthly blood draws done and I try to schedule my trips to accommodate those. I carry a prescription and order sheet for the blood draw, just in case I'm late getting back for the next scheduled one.


The other thing that I do is check and see if there is a scleroderma specialist in the area I'm going to and/or ask my local doctors if they can recommend someone. I always carry a complete list of medications with both brand and medical names and note against each what it is for. I also carry a complete list of my doctors with emergency contact numbers.


One thing that is important is to talk with your medical insurance carrier and see if there is any problem with coverage anywhere along your planned itinerary. If there is, supplemental insurance is a good idea. For overseas, usually an embassy or consulate can give you some advice or at least a contact number for someone who can steer you to an insurance carrier that is accepted in that country.


I think the only thing that's going to stop me traveling would be my husband taking the wheels off the car and hiding my passport! ;)


Bon voyage!

Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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I travel regularly. I've been to New Zealand twice, and Mexico once in the past 6 months. I line up doctors ahead of time in the area I am going to. I buy international health care insurance. I also take every conceivable pill/med I might need. In addition I take pillow, gloves, scarfs, cuddle duds, anything that I can think of I may need to be comfortable and warm. The one thing I will start bringing that I didn't before is a mask for the plane.


I have fallen in love with an alternative doctor in NZ. I may have to start writing off expenses just to see her!

Warm and gentle hugs,



ISN Support Specialist

International Scleroderma Network (ISN)

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