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Nerve Stimulation

5 posts in this topic

Some of you may remember me posting about bowel issues I was having, well tomorrow I have an appointment to discuss the possibility of having Sacral Nerve Stimulation. I have to admit I'm quite worried about the appointment because it's with someone different & it's a man! I know this is daft but it was a bit easier seeing the specialist nurse but this person specialises in nerve stimulation. I have had to keep a bowel diary for the last 2 weeks and fill in a rather long questionaire.

 

Has anyone had this done? Did it help?

 

Jensue

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Hey You,

I've been thinking about you.

 

I don't know if this is the same thing or not, but a friend of mine was having a similar problem. She went to a doctor that did some sort of "stimulation" by digitally penetrating her anus and moving something around. Whatever it was called, it worked for her. Is that what you are talking about?


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Hi Jensue,

 

Tomorrow is the big day, eh? I'd be nervous too!

 

We've got 2 articles on sacral nerve stimulation in our Bowel Incontinence section:

 

Medium-term results of permanent sacral nerve stimulation for faecal incontinence. Sacral nerve stimulation is a safe and effective treatment for faecal incontinence when conventional treatment has failed. There is minimal morbidity. The benefit is maintained in the medium term. Br J Surg 2002 Jul;89(7):896-901 PubMed

 

Sacral nerve stimulation for faecal incontinence due to systemic sclerosis. Sacral nerve stimulation is a safe and effective treatment for resistant faecal incontinence secondary to scleroderma. Gut 2002 Dec;51(6):881-3 PubMed

 

Both of them were British studies, by the way.

 

I'll keep my fingers crossed that the appointment goes well!

 

All the best,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Hi Sweet

 

I have had nerve test done which sounds very much like what your friend had but I think they are talking about doing some sort of implant.

 

Jeannie thanks for those links, it does sound quite positive so if they do decide this is the way to go perhaps it will solve my issues.

 

Jensue

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Well I am now to go on the list to have this treatment done, the hospital I go to has done a lot of these implants & is also a training hospital for this procedure. The person I saw talked me through the whole process and asked lots of questions as well as looking at my bowel diary & questionaire. It will be done firstly as a temporary implant & if this proves to help me then they will go on to fit a permanent one at the end of summer. I will have to go back for checkups to make sure its working. They put electrodes into the sacral nerve & attach a battery, this then should help the muscles etc in that area to work so that bowel control is restored, it's a bit like a pacemaker.

I'm am hoping that this works for me, it would be so good not having to worry so much where toilets are & if I can get to them in time.

 

Jensue

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