Jump to content
Sclero Forums

Recommended Posts

Hi All,

 

I just spoke to Penny and she is still in the hospital, still undergoing tests, and "bored out of my mind." She's requesting we all turn up and do a diversionary happy dance so she can make a run for it. :lol:

 

The hospital does have free wireless internet and she's got her laptop, so if she's still there tomorrow, she'll try and log on. In the meantime, we could all start PM-ing her with one-liners to keep her spirits up, don't ya think?


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

Share this post


Link to post
Share on other sites

Hi Jeannie,

 

Thanks for the update on Penny.

 

Now exactly how can we do a Sclero Happy Dance because she's in the hospital? We'll need to save that for when she gets out!

 

But we could do a Sclero Hospital Line Dance! Put on the music. Okay that's a snappy beat you got there, Jeannie. I didn't know you played the drums. I'll go first. One two three, left foot kick, right left right, jump forward, jump back, step two three four, right foot kick...


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

Share this post


Link to post
Share on other sites

Jeannie and Shelley,

 

Well, I was released at 10PM friday night... seems that laying in a hospital bed and sleeping most of the time did not make my blood pressure swing wildly enough and they sent me home with a pat on my head and told me to come back if it started up again. I got home and tested it after moving around 170/109... and am not heading back just to go through the same thing again. It was 169/100 when I arrived there.

 

They were going to do a barium swallow study, but the barium has saccharin in it, as does the other dye solution they were going to try. Artificial sweeteners cause migraines for me, so they could not do that study.

 

The doctor who sent me home said "Go to John Hopkin's" (what a great idea, gee why didn't I think of that? <_< )

 

I will be afraid to answer my phone tomorrow and Monday, because my doctor is going to have fits... he did not want me to leave without answers, but I can see where the hospital doctors are coming from, that bed could be used by someone they can actually help.

 

So... in a strange way, it went almost exactly like I thought it would, they saw nothing and sent me home. My doctor, who happened to catch the BP fluctuations himself, believes me at least.

 

Anyway, I am home.... and I want to send out a special warm fuzzy hug to Jeannie who called me to see how things were going.

Share this post


Link to post
Share on other sites

Hi Penny,

 

I'll take that hug! Here comes one back: (((HUG)))

 

You might have Loki answer the phone for you. :) I know he can do it!

 

It's a shame you didn't get the answers you hoped for~ Do you think your new doctor will refer you to Johns Hopkins? You know what my memory is like (who are you again? Never mind that, who am I??), but wasn't one of the problems with your old doctor that he'd never do the referral?

 

Keep your chin up, Honey. Easier said than done, I know, in the face of such disappointment. If you keep getting hot flushes this weekend, it'll just be all of us sending you a constant stream of warm wishes and hugs.


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

Share this post


Link to post
Share on other sites

Oh boy...I'm so disappointed I didn't see this soon enough to join y'all in doing the Sclero Hospital Line Dance for "Our PPBB"...

 

I'm just glad you ARE out of the hospital, albeit without the info you just knew they wouldn't have for you, Pen.

 

I'm going to keep you in my loving thoughts and get ready to do whatever I need to do to help.


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

×