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Amanda Thorpe

Morphea plaque?

8 posts in this topic

Hello All

 

Now I know you're not medically trained so I'm not after a diagnosis (I see my rheumatologist in 3 weeks anyway) I was just curious as to whether you'd draw the same conclusion.

 

A rheumatologist previously said I probably had sclero with a morphea overlap and I thought nothing of it. Well I then had a crop of tiny blisters appear on the right shin that have all merged into one and there's now another one beginning nearby, great they can be neighbours. The blister thingy does not itch nor does it hurt but it is slowly but surely getting bigger and clearly the plan is that little and large merge and make a take over bid for the rest of the shin.

 

I have recently read that morphea can blister but it's rare and it can also then ulcerate if the blister is damaged.

 

Anyone heard of morphea doing this or any other ideas about what it could be, the wackier the better. I've already googled just about every skin disease that blisters and still haven't found one I like nearly as much as morphea.

 

Take care.

 

Amanda


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Amanda,

 

Wow that sounds interesting! I'm eager to hear what your rheumatologist makes of it. In the meantime though, could you check with your primary care or dermatologist, just on the off chance it is something else that might need immediate care?


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hello Shelley

 

I have already seen my general practitioner who thinks it's the sclero but I've never had this blister thingy before so I'm not convinced it's as a result of the SSc. Watch this space and I'll let you know!

 

Take care.

 

Amanda


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hey Amanda - any chance of a photo? It sounds really interesting!

 

I'm glad it doesn't itch. :)

 

Warm hugs,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Hi Amanda,

 

Yeah and if it really is Bullous Morphea we need a picture for our ISN Photo Repository. Pictures are very hard to come by as there are less than 100 cases reported in world literature.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hello All!

 

This is awesome and I'm having it! I can then claim to have a more rare disease than my twin. I had been winning until she was diagnosed with discoid lupus, so if it is bullous morphea I win everything forever!!

 

If it is bullous morphea I will get a photo onto the website. I see my rheumatologist on the 28th of this month and will let you know.

 

Amanda


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Amanda, It sounds like I have it too...........Your not having it on your own! :-)

 

Mine, on forearms, alert me, by itching, when I look, it is like a bite, without entry hole, after a couple of hours, it is as if it is filled with pale yellow substance, then flattens out, with a lilac ring.

 

We can compare them, on Saturday, haha!


Take care.

Lynne

 

A trouble shared is halved, a joy shared is doubled

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Lynne

 

I am sincerely looking forward to comparing skin diseases! Oh I never thought I'd be saying that! :lol:

 

We'll have a good comparison on Saturday but I'm sure mine's bigger you know... :D

 

Take care

 

Amanda


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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