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Raynaud's in feet

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I am so thankful for the suggestions. I just left a grocery store that was so cold I had to leave almost immediately. It is 60 degrees outside and the air conditioner had the building freezing cold. Isn't that crazy? Air conditioning is harder on me than actual cold weather.

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Hello All

 

I've just read this thread. I have Raynauds in my feet and it's worse than my hands. Regarding shoes, live in the now and kiss the nice shoes goodbye! I can only wear one type of shoe of which I have 2 pairs and they enable me to walk without using a walking aid. They are ugly and will always be ugly but there you go.

 

Apart from the Raynaud's I have no movement in the ankles and little in the feet which have thankfully left the hypersensitive phase. That was murder because everything hurt them even socks!

 

I recently went to a wedding and wore my lovely full length sleeveless dress, poking out from underneath it were my "special" shoes that look like a pair of platform trainers. Picture the scene, I have on a hat, dress, shrug, gloves, matching bag and jewellery and "special shoes"!! Did I care? No way!

 

I never thought I'd say it, being only 40 but when it comes to footwear comfort has to come first. :(

 

Take care

 

Amanda


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Amanda, I also love your sclero-stylish ways!

 

I have only one pair of shoes now. They are very high quality German-made shoes with custom arch supports, from a shop that specializes in fitting difficult feet. They are perfect for wearing with either one or two pair of thick wool socks. I've had them for several years and would not trade them for anything in the world!

 

I know I need a pair of dress shoes, too, sooner or later, or surely I will end up at a fancy occasion in a dress with these clunkers. But so far I have managed to duck every really fancy occasion and just wear a nice pants outfit to the rest. Besides, you don't want me at fancy places; I get nervous and do the first thing that comes to mind, which is usually starting a food fight. And you think I'm kidding? Ha!

 

So the world is probably a better place for my feet only being happy in one special pair of custom orthotics. In case of fire, it's be a real toss up over whether I'd grab my purse or my shoes. I seriously don't know how I ever got by without them, and I know without a doubt they are key to relieving major pain from my toes to my neck.

 

One special pair of custom quality shoes cost about as much, usually, as about 4 pairs of tennis shoes or perhaps 2 good heels. But when I finally saved up and got my good shoes (I had my eye on them for over a year), I literally threw out all the rest of my shoes because I never wanted my feet/legs/back/neck to hurt that bad again.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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I only wear a lace up shoe so that my orthotics will fit in and are comfortable. I wear trousers, usually with knee socks because they help to keep my lower legs warm as well as my feet. Even when I need to wear something a bit smarter I still wear my comfy shoes they don't look great with them but at least I'm comfy. My only problem is that they are nearly worn out and they have stopped making them so I keep looking for another shoe which will fit my orthotics and are comfy.

 

Jensue

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Oh, yes, I have Raynaud's in my feet. It's hard to tell the difference between the sclero and the Raynaud's without touching. And they hurt all of the time. I, too, cannot wear socks without pain.

 

As far as shoes, only when necessary. I wear flip flops or barefeet. Of course, I live in warm weather nearly all year long. Only December, January and February can be cold, but even then, never below freezing, and mostly in the 50's.

 

HONEY

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I am so happy to hear that I am not alone with my feet issues. The past couple of weeks I have also noticed the skin on the bottom of my feet and the palms of my hands is thickening. My feet hurt so much that I have been sleeping on the floor with my feet up on the bed. I wear woolly clogs to work even when it is 100 plus outside. I am beyond frustrated, but I try not to let my family know exactly how much pain I am in. I am in pain 100 percent of the time on some level.


~ Teresa~

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