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Sweet

Disability Review

9 posts in this topic

Sweet, unless you've had a miraculous healing this afternoon that you haven't shared with us yet, or if you've gone back to work full-time, you have absolutely nothing in the world to worry about.

 

In fact, even if you have gone back to work full-time, if you properly claimed it all through the trial work program, you get your full work pay (regardless of how much you make!) PLUS your SSDIB for 12 full months. Then they'd review you to see if you were still disabled, or not. Even if you were no longer disabled, you would still retain Medicare coverage for about 5 more years and if you ever relapsed in that time, your disability would kick right back in again.

 

Given your illness plus the extra health challenges you are bravely enduring now, plus your lack of employment, even on a trial work program, there is no way on earth they would consider you to not be disabled. They will probably request your recent medical records and then cancel your appointment with their review doctor. Worse comes to worse, you'd meet with a disability examiner who will probably be reading your medical records back to you, asking if they are true, and shaking their head over all you are going through and what a waste of their time it amounts to.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Sweet,

You have nothing to worry about. I was reviewed a year or so ago. SS sent me a form to fill out with questions like:

 

Are you still disabled?

Have you worked in the past 12 months?

Has your condition improved?

Has your doctor said you can return to work? etc...

 

Then there is a section where you can fill in additional information. You will have plenty to fill in!!! I filled in my ILD diagnosis, cytoxan treatments, liver biopsy and all of the tests I had had in the past few years. I sent it back and a few weeks later I received a letter from SS stating there was no change in my benefits. :)

 

Hugs,

Lisa


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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I am concerned about this also. I have disability through an insurance company, although I was also approved through social security in 2005. I can't receive SS disability due to not paying into it for over 5 consecutive years, although I could have received Medicare if I needed it. Does anyone know what my chances are of losing my status? I am stable, no miracles here, but I still wonder.

 

Clem

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Hi Shelley, thanks for the reassurance. That made me feel MUCH better.

 

Lisa thanks for your story, that was helpful. So the forms were for you to fill out only? Didn't your doctor/doctors have to fill something out?


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Mine did. The rheumatologist had to fill out a portion of the form.. My doctor also stated that I would never be able to return to work, due to my chronic illnesses as I am never expected to return (recover) to better health.


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Sweet,

They would only send the form to my doctor if they needed additional information. I guess with everything I had going on there was no need.

 

Let us know how it goes!

 

Hugs,

Lisa


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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I wish you good luck. I filed three years ago and I still do not have an answer. I am waiting for information on my request for reconsideration. Each case, as I am sure you know, is judged on its own merits. Filing should be done as soon as you are certifiably unable to work to seal the date. I don't have a precise diagnosis, but at least my date is protected.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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