MUFFINTOP

Avoiding medical retirement

24 posts in this topic

It is not directly comparable to SSD, but there are similarities. Disability Living allowance has two components, Care and Mobility. You can continue to work and receive one or both components. In addition, there is another benefit called Incapacity Benefit (IB) for those who are incapable of work. A person in the UK might be eligible for both components of DLA and IB, or IB with no DLA or any other combination. With IB you are not permitted (because you do not have the 'capacity' to work) but may be approved to do some work up to a limit.

 

There are other benefits available depending on the circumstances, some of which are means tested (i.e. depending on your overall financial condition) and others which are not. These might include Carer's Allowance, Housing Benefit, Pension Credit, etc. All of these are explained at the www.direct.gov.uk site link in my post above.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hello Trueman

 

How lovely to see you posting! I hope you are doing well, when I first joined the forum you posts were one of the ones I looked forward to and read avidly.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi everyone

 

Thanks for all your useful comments and information. I have also been advised to claim for a DLA (disability living allowance) increase as I'm only on the lower rate of the care component (and Incapacity Benefit) and now my sytemic sclero is advancing rapidly, with heart, lung anf kidney involvement.

 

The forms have arrived and I can only tackle them a bit at a time, as it's now 3 seperate booklets, and some info has to be duplicated (grumble) writing is not as tidy as before sclero....

 

Debs

Share this post


Link to post
Share on other sites

Hello Debs

 

I am so sorry you are having so many internal problems right now, the last thing you need is to have to fill in forms! I know from experience how arduous the disability living allowance for is. Remember to talk about your worst days not the good ones.

 

According to a programme I saw the CAB (Citizens Advice Bureau) have advisors who can help with completion of the forms, why not give your local branch a ring and ask if they can help you as you're finding it difficul because of deteriorating health?

 

Either way I do hope you are successful, I've just had my IB (Incapacity Benefit) halved because I get an occupational pension. Funny they don't give you any idea as to how to make up the shortfall...I know I'll get a small job, but wait a minute if I could do that I wouldn't need all my DLA so I'd then need a bigger job, but wait a minute then I'd not need any DLA or IB so I then need full time work. Didn't I just get pensioned off because I was too ill to work? :blink:

 

I'm sure someone somewhere can make sense of it, not me!

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi Debs

Amanda is correct about CAB having advisors who will actually help you to complete the forms. I did see them them when I had to fill in for IB & they where certainly very helpful. They are so used to these forms that they know exactly how to word them. Do ring up for an appointment with someone.

 

Hi Amanda

Since getting my Occupational pension last summer my IB has now dropped t a measly £2.56 a month! It is up for review at the end of September so not sure what will happen then. The only reason I would like to keep going with it is because of my state pension, they pay your stamp for you which means you'll get a full state pension.

 

After having worked all my life & never claimed anything I find it hard now & do feel guilty about it even though I'm not really getting anything.

 

Jensue

Share this post


Link to post
Share on other sites

Hello Jensue

 

It is hard and boy do you feel guilty! Funny that honest people feel guilty and fraudsters don't.

 

I do also find it hard that after working ever since leaving college and being entitled to my pension that I would be penalised for getting it by having my incapacity benefit cut. It's not like you claim IB because you're work shy!

 

You are right to claim it regardless of amount because of what it entitles you to.

 

Think I might drop my MP (member of parliament) a line about the IB and why specifically pension income is taken into account. It's not right to be financially worse off because you can't work, the benefit system should distinguish between can't work and won't work.

 

Well I feel better now! Take care!


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

i have low rate dla, but had to fight for that , i did apply for full dla but got refused they sent out a doctor to my house and he didn't see my suffering , i dont even think he knew what sclerdorma is ,he wrote a lot of things down , and looked down his specs at me , its very annoying that we have to fight what we are intitled to, we have this condition not by choice, and to suffer as we do , it really gets to me as I know people who get dla for being alchol dependent yet they choose to drink ...we dont choose to be ill but were not intitled to the benifit we rightly deserve

jaxsxx


live life for today and not for tomorrow

 

Share this post


Link to post
Share on other sites

Hello Jax

 

It is a frustrating system for sure. As you say it's very hard to be ill yet have to fight for benefits, it's enough to make you go out and get a job! :lol: If only we could..we jolly well would!

 

Would involving any specialist you see help your case? No one came to see me, if they had I would have insisted on them being a scleroderma expert, they took the evidence from my rheumatologist who is an expert in the field. Perhaps a letter from your rheumatologist to the DWP (Department of Work and Pensions) migh increase the rate you receive. I would have thought that your rheumatologist, being well versed in sclero could easily trump the findings of their doctor.

 

Mind you if you haven't got the energy to do so I don't blame you, I never want to see that wretched 50 page form again! Unfortunately I will in 2011 when I'm reviewed.

 

Having said all that the CAB (Citizen's Advice Bureau) have people who help with completion of the form with a view to making sure the person gets the right level of disability living allowance. Maybe that would help you?

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now