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jefa

Also from Scotland

4 posts in this topic

Hi, everyone.

 

I come from Clydebank, which is not that far from Glasgow, Scotland. I am going to be 62 in a couple of weeks and I have not been working since 2005. I found this site (well, it was on the MSN site back then) shortly afterwards. I have found more information about the various things going on in this one place than anywhere else, but the best thing is the wonderful warmth and support I get from all the lovely people.

 

We share happy dances on good days and give each other a boost on the bad ones. But for me, the best part is being able to compare notes so I can go into my short little doctor's appointments with informed questions.

 

I am really happy that Amanda is here to lead this sub forum as there are so many things that are different about the UK health system. Even the medicines have different names.

 

I have been living in Scotland since I married my Glaswegian husband in 1997. Before that I lived in California where my grown children and grandchildren still live. I miss them, but I love the people I have met in the UK. I look forward to getting to know you all better.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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Hi jefa

i love Scotland and Glasgow .

Welcome to forum .

I am christine 56 I have slc and R.athritis I am mad and moblie I am married with a son .About to start uni number 2 to do masters .

i come from Norfolk

Love Christine ( chockers )

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Hi jefa

 

I am Shona, 31 and also come from Scotland. husband, 3 kids aged 13, 7 & 4 (yes I was an early starter!), 3 dogs, pony and 30,000 chickens :rolleyes: We live on a free range chicken farm in the hills between Lockerbie and Langholm, so tend to spend my days in boilersuit and wellies.

 

I was diagnosed properly earlier this year with scleroderma but have had raynauds since I was in my teens, this has got progressively worse as I have got older and the only respite from it was when I was pregnant. In fact my consultant said if I had a few more kids between now and my 40s that might stave things off for a while. hope they were joking three is enough to deal with.

 

Currently I am on 2 different types of blood pressure treatment to keep my circulation going but the hospital wants to start me on bostanten however the nice people that deal with the funding have refused as it costs too much so they are taking me in in October and again in January for an Ilioprost infusion plus have told me to stop working outside - but that is easier said than done.

 

Anyway having a nice half hour of peace and quiet while the kids are doing their homework and thought I would browse the forum pages. It is so great to read what everyone else is doing and how they are coping as it is such a strange illness that you never know how you are going to feel next. I feel so much more upbeat this time as the last time I posted I was quite fed up, as I was due to have an operation on my lower diegestive tract to reduce the pain and help things. It worked really well and currently I am feeling great. Everyone has noticed and said how much better I look and am in better form. So I must have been a right grumpy cow for months.

 

Anyway better go and referee the kids.

 

Shona

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Hello Shona

 

How on earth do you manage...my mind boggles! I'm glad you and those around you found some relief after your surgery! :lol:

 

I also find this forum a great resource and I am constantly amazed by people who are having a difficult time themselves yet they post to encourage others. I look forward to hearing more from you and take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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