Susanna

High Blood Pressure

12 posts in this topic

Has anyone else had the experience of their blood pressure going from around 110/65 to 150/85 in a year. Is this a normal consequence of scleroderma or a symptom I should be concerned about? I was first diagnosed about five years ago with limited systemic scleroderma. The main major health effect so far as been stomach bleeding for which I have to have regular argon laser treatment.

 

Susanna

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Susanna , I would like to welcome you to Sclero Forums. We are a great bunch of wonderful people. I don't know much about high blood pressure except that as I get older mine keeps getting higher, along with cholestrol problems. I guess many of us need to change our way of eating and exercising to put balance back into our lives. I am looking forward to learning more about you and your diagnosis.


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Hi Susanna ,

 

Have you been checked for the Anti-RNA Polymerase 1/111 antibody? That shows if you have a higher chance of renal involvement due to the Sclero. Increased BP is one sign of kidney invovlment.

 

Take care, Everyone.

Margaret

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Hi Susanna,

 

I'd like to welcome you to the Forum too. I hope we can provide you with reliable information, friendship, and lots of our famous International Scleroderma Network hugs.

 

There are a lot of things that can cause high blood pressure and I think it's always something that ought to be checked out. I suspect that's why every time you set foot in a doctor's office, they take your blood pressure. :)

 

If it were me, I'd make the call.

 

Warm hugs and best wishes,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Hi Susanna - A sudden spike in my blood pressure was the very beginning of my journey in discovering I had scleroderma. It took quite a while to get it under control. The first year was a nightmare. All the new doctors, tests, etc. was all consuming. Now 6 years later and my calendar is still full of appointments. I guess you could say it is my new "career". Who knew? Anyway, hang in there and we're glad you checked us out!

 

Ann

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Thanks everyone for your warm welcome and replies. I have always had low blood pressure, even in the first few years after diagnosis, have a near model diet (it's true – I am lucky to like all the right foods) and try to exercise regularly though long work hours tend to get in the way of that too often. Guess I had better report to my doctor - the high blood pressure was picked up at hospital and then confirmed by a stand-in doctor who didn't seem worried but I doubt he knew much about scleroderma.

 

Susanna

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Susanna,

Welcome to the ISN forums! As you've already witnessed, it's a great place for support and information. One thing to remember about scleroderma is that it is poorly defined - no one knows what's going to happen next, when and if ever. So anything out of the ordinary should always be brought to the attention of your rheumatologist.

 

As already mentioned, high blood pressure can be caused by several factors. I found this page at MedicineNet.com that talks about "What causes high blood pressure?" Because yours is a change from a normally low bp, it could indicate that something is going on that needs to be addressed. You obviously know what's normal for you. When it's not normal, please get it checked out.

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Hi Susanna,

 

I'm a bit behind in welcoming you to the forum! I'm so glad you found us!

 

The high blood pressure was the second of many that took me on this journey.

 

Because of the risk to the kidneys, I was immediately put on Beta Blockers and have taken them ever since.


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Hello Susanna

 

Before sclero my blood pressure was always 117/70 whether I put on weight or exercised it never went up...until now. Over the last few months it crept up to 130/90 and at my last rheumatologist appointment it was 145/95 so I was immediately put on medication and now it's 110/70.

 

It is sclero related in my case but it does not necessarrily mean I will have a renal crisis. I just have to make sure I always take the medication, Mrs rheumatologist was very insistent about it telling me not to "play around"!

 

You must see your doctor about it though whatever the cause or potential outcome and we'll all be waiting here to find out what your doctor said.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hello Everybody,

 

Thanks for all your replies. I have been back to my regular doctor. No kidney problems have shown up in blood tests but initial testing shows I may have developed some lung impairment. Waiting now for further testing with more accurate and sophisticated equipment. Meanwhile fingers crossed!

 

Thanks again,

 

Susanna.

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Hi Susanna,

 

Do you know when you'll be having the further lung function testing? We'll all have our fingers crossed for you.

 

Best wishes,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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