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purplelibrarian

Has anyone done the EMG test?

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I went to a neurologist because my hands have fallen asleep during the night. I also have Raynauds.

 

He said I need a nerve test. He wrote a prescription that said EMG.

 

He said it can be painful. He was not a very talkative doctor and I didn't like his vibe.

 

I am going to see another neurologist.

 

Should I go through this test? I read online what it is and it doesn't seem pleasant.

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Hi,

I have had it done. The nurse that did it said most people say it really hurts. I didn't think it was that bad. For me if I know it won't last long I am ok. It's a very different sensation. It feels like your muscle is going to jump out of your skin. Just think great thoughts and you will be fine.

Nan

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I attempted to have a nerve conduction test done by a neurologist but my skin was so tight from the sclero that the electronic pulses couldn't get through. I'd had one done pre-sclero and it was a bit uncomfortable, but bearable. I think the EMG's are similiar. If you Google, "EMG test" you will find a ton of information including a video of the procedure. That may ease your mind some.

 

Good luck!


I may have Scleroderma, but Scleroderma doesn't have me!

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Hi Purplelibrarian,

 

I had it done and my experience was pretty much like Nan's. I don't know if you can relate to this, but to me it felt a lot like touching a 'live' electric fence. It wasn't comfortable, but wasn't really painful either.

 

Shame about the doctor's lack of empathy. Too bad that's another 'disease' they don't have a cure for. :lol:

 

Warm hugs,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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I had it done a few times. The test for me was uncomfortable. However, the results always came back normal even though I had severe numbness, tingling and pain. After several different doctors, a neurologist did a skin biopsy and I had small fiber neuropathy, which usually does not show up on an emg. So if you results come back ok and you are still having problems, ask about small fiber neuropathy.

 

EH


ANN

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I have peripheral neuropathy which is how my disease started. I have had this test done twice to find out that I have permanent nerve damage up to my knees. It's uncomfortable but not that bad. I remember thinking that if I were to drink water that it would come out like a sprinkler through all the holes they poked!! It's an important test for you to have to find out if you have muscle damage and just what's going on. My numbness was gone for a little while and has just come back. My neurologist said that if I were to sit by a fire that I wouldn't be able to tell if my feet were on fire. For a while I couldn't tell if my foot was on the footfeet of the car while driving. A second opinions is never a bad thing. I was lucky that my neurologist is a specialist in peripheral neuropathy.

 

I so hope it all goes well for you and that you get some answers.

 

Warm hugs,

 

Peggy

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Update:

I had the EMG test. It wasn't too bad. It felt like someone was hitting your funny bone. The neurologist tested my arms for carpal tunnel syndrome. Everything is normal.

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That is good news, purplelibrarian, with regard to the results of the EMG.

 

The process of elimination...don't you wish that the last test could be the first, in finding out the cause of the problem?

 

Please continue to keep us posted? I have no doubt all of us hope your wait is short!


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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I tend to have this problem, with hands/arms "falling asleep" too easily. I have found it helpful to take a vitamin B6 supplement. It also seems to help with peripheral neuropathy in my feet (left over from cancer treatment). In that case, it was recommended by my oncologist.

 

Craig

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