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Hi Everybody

 

Can anyone tell me...with Raynauds, will your extremities always eventually turn all 3 colours?

 

Curious to know if it ever stays just as blanching (wondering if that means it might be milder or does it simply mean nothing at all?) or if regardless, it will eventually progress and turn all 3 colours anyway?

 

Thanks!


Sending good wishes your way!

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Hi Snowy,

 

That's an interesting question and it will be interesting to hear everyone's answers. My guess is that no two responses will be the same, since no two of us seem to have exactly the same experience.

 

Personally, my Raynaud's often depends on how cold it is... if I get very chilled, I turn blue, or even if I get very anxious or upset sometimes. Or a change in temperature, say, getting in and out of a warm shower. My toes also turn blue so I have to avoid sandals. Restaurants and movie theaters can be quite a nightmare because of air conditioning. Last summer I was in 100 degree weather and stepping out of a pool I turned blue, it took me quite a while to warm up even in that hot weather. The friend I was with has small children who were amazed and totally riveted by my color changes!

 

I am not one of those people who had Raynaud's before having sclero, in fact I had none at all until months after other symptoms occurred which I understand is quite unusual. Strange, this disease is so unpredictable.

 

I'll be watching to see what other people have to say!

 

Good luck,

 

Mary in Philly


Diffuse sclero; diabetes; hypertension; GERD with Barrett's

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Snowbird your question is a good one. Myself I only have had the white blanching of a few of my fingers at one time, on a somewhat regular basis. I dive or jump into our lake and I come up with three totally white fingers. A few times though not many I have had my fingers and toes turn blue. Only because I didn't have gloves or thick enough socks on when the weather turned cool on me. My mother and older sister have had Raynaud's almost all their lives but it hasn't progressed past the white stages ever. So, I guess it depends on how well you take care of your extremities or just luck of the draw.


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Humnn....luck of the draw is likely it since nothing seems to be clear cut but I am curious! I'm going to ask my specialist when I see her in July to see what she says too.

 

Thanks, Mary & Sheryl


Sending good wishes your way!

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That was interesting. I have one friend with Raynaud's and scleroderma who seems to only get the blanching, another with Raynaud's and NO scleroderma who also only gets the blanching. I get all 3 and as time as gone by (3 years since diagnosis), the color changes have gotten more extreme.

 

One of the things that's also been interesting is how our normal skin tone affects how the changes appear. My friend without scleroderma has a fairly olive skin tone and with her the blanching is extremely noticeable and her fingers turn ivory colored. I've always been on the pink side and with me, it's the blue phase, I think. My fingers go an interesting shade of purple. That's supposed to be a good color for redheads! :lol:


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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I have to agree that this is an interesting question. For me I had just the blanching badly for a number of years but now get the full 3 colour changes and much more pain in my hands. Like others just stepping into a shower can turn my toes purple & just small temperature changes can bring on an attack. When my hands are totally blanched my husband calls it 'chicken fingers'!

Jensue

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Hi Snowbird, its amazing how Raynauds can manifest so differently in different people. I have never had the white phase. My hands just turn blue several times a day winter and summer, sometimes with pain , other times not. I don't often get a red phase either. I have tried lots of different meds, just started a new one this week which seems to be promising at the moment.

 

Lizzie

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Jensue,

I have no symptoms of Raynaud's, but I am curious of your reaction when you get in the shower. Is the water cold and that is why you have an attack or is it because the shower floor is still cold when you step on it and triggers it? When you have pain in your hands, is it the entire hand or only in the fingers that change color?

 

Thanks,

Cheryle

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Hi snowbird!!

 

My Raynaud' do all the colors. They get white first, then purple/blue and then red. When it is hot they stay red and swollen. The blue purple is what they stay the longest. Sometimes hours! I do not have much pain, just numbness.

 

Hugs

Nina

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Hi all,

 

My hands and feet go white then red, and my nose is always like an ice cube, even in summer. And if I get slightly chilled even for just a moment, my insides suddenly feel all 'jumpy' and I'm cold to my core.

 

Debs

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My fingertips used to blanch when I was younger. Now it's purple, and deep purple, and dead guy blue then bright bright pink/red.

 

My feet/hands also turn blue when I hit the shower also. The water is warm for me, but it seems that temperature difference, even slight, (warm to warmer) affects my color changes.

 

Kind of funny now that the weather is warmer, my Raynaud's has gotten worse!

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Cherlye,

 

When I get in the shower it can be just the slight temperature change that causes an attack or sometimes it's the shower base which is still cold when I get into the shower.

 

Deb, I know what you mean about your insides getting chilled to the core and it does become so hard to warm up again.

 

Jensue

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Hey Folks,

 

Here's something interesting. Scary, but interesting. A few years back I went to a science museum with my kids, and there was an infra-red camera there which was kind of amusing and fun to see the different color changes regarding thermal wavelengths from blue to orange to red and such. In other words, it shows warmer and cooler areas on the human body and surroundings. Like on the science channel stuff.

 

Everyone was in line and all the other people had red (for warm) cores and cooler areas at the very edges of their bodies.

Except mine. I was almost totally blue, the only red areas were my trunk and the middle of my face. Pretty much most of my extremities showed cooler.

 

It was kind of shocking! There on the screen you could see the actual results of Raynaud's. Mind you, I was not having an attack, nor was I particularly chilled at the moment. It was just the poor circulation in my body.

 

Freaky. Just thought I'd share that!

 

Mary


Diffuse sclero; diabetes; hypertension; GERD with Barrett's

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