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Judy Devlin

New Story: Scott: Friend of Patient with CREST

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Scott: Friend of Patient with CREST One of her first doctors said she had five years to live. Why would he say such a thing? I have read story after story of people having CREST for decades...

There are over 1,000 patient and caregiver stories on the main Sclero.org site.

Warm regards,

 

Judy Devlin

ISN Archive Committee Chair

International Scleroderma Network

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Do you think she has PAH or lung issues? I am not a doctor, but that is just a thought. I thought there was treatment for these. I have CREST and the doctor didn't say I have 5 years.

Take care,

Nan

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