Jump to content
Sclero Forums
Lillskuzi

Summer is here?

Recommended Posts

Hello all

 

We have been lucky on the South Coast, having had a few days of sunny weather over the last few weeks.

I still find my Raynauds playing up though, and sometimes have felt a bit silly to be wearing sunglasses, sandals and gloves all at the same time!!! I went to Portugal a few weeks ago, and even though it was lovely and warm, it was by the sea and so there was always a sea breeze, and my poor hands really suffered! I few people gave me funny looks, being in the Algarve in May with gloves on, but I tried not to let it bother me!!! I was a bit self conscious, though.

 

Any one else got any similar experiences?


Susie

Share this post


Link to post
Share on other sites

Hello Susie

 

Welcome to the UK forum, I see you've posted on the main one before!

 

My Raynaud's isn't that bad and cramp is my worst symptom. So far I've not had to wear gloves and sunglasses but who knows, you may have started a trend! :lol:

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi Susie,

 

It seems really unfair that we spend our winters longing for a warm summer and when it comes, sigh, we are still wandering around in wooly socks and gloves~

 

I don't think it really matters how warm and sunny the day is - the minute the breeze comes up, bang! Raynaud's... :angry: Coming inside from the warm, sheltered garden to the cooler house will do it to me too.

 

Ah well, I live in an area where you'll frequently see people in the winter wearing a fleece pullover, shorts, wooly socks and sandals. I figure that garb is no more strange than me wearing long pants, sleeves, blah, blah and etc. in the summer!

 

Warm hugs,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

Share this post


Link to post
Share on other sites

Oh No! Not socks and sandals! The worst of the worst!

 

Very recently I was going to but a pair of sandals and was secretly going to wear them around the house with...socks...yes even I was going to commit that fashoin error of socks and sandals. Of course I did not buy the sandals in the end, couldn't trust myself to keep the socks for indoor use only! :lol:

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

....As long as we don't resort to wearing our fuzzy slippers in the midst of summer...that would be the greatest of "faux pas", me thinks!lol

 

You, Ladies are so cute!

 

From the 'nother one Susie, Susie (aka Lillskuzi)!


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi Susie

 

I'm on the east coast so get some cold winds and like you I go out in sunglasses and gloves because of my Raynaud's, actually I don't go anywhere now without gloves. I get funny looks but don't care anymore, I just want to stay warm.

 

Amanda I don't do sandals in this country anymore just wear socks & lighter weight leather shoes, my sandals only get worn when I'm abroad somewhere very warm!

 

 

Jensue

Share this post


Link to post
Share on other sites

Hey Jensue

 

Yeah, we are setting a sunglasses and gloves trend!!

I expect Vogue will cotton on to the stylistic genius of that combination in a few years' time ;-)_

 

Go us!


Susie

Share this post


Link to post
Share on other sites

The best thing I ever bought last year, was a pair of very soft black leather gloves which come half way up my arm. Very expensive but they certainly helped a lot and I wouldn't go out without them.

I am thinking of buying a light colour to wear during the summer

 

Carole

BEING SO CHEERFUL KEEPS ME GOING

Share this post


Link to post
Share on other sites

Hello Carole

 

I believe they're called opera gloves. I had quite a few pair of material ones, different colours and lengths for parties and weddings. They look elegeant and serve a very useful purpose mind you I could do with a leather pair myself!

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

I am a woman of a certain age who has learned to make my fashion idiosyncrasies into a statement. Who says you can't wear sandals with socks? Since I lost the fat pads on the bottom of my feet, I have been wearing fluffy thick socks. Now summer is here, I have purchased a pair of walking sandals with velcro straps at the toe, across the top of the foot and around the back of the heel. With this level of adjustment, they cushion my feet perfectly and make walking a possibility again. I am going out this morning to pick up my new glasses which I selected from the men's section to get a pair that feel right and give me a good field of vision. I will be wearing my purple socks with my new sandals and feeling great about it. :D


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Oh it's a sclero thing! The sandals I was going to buy also had velcro straps over the toe, heel and ankle...and I have purple fluffy socks!

 

Bring on the catwalk for the show fashion forgot!


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Well for the amount of pairs of gloves I have, I could hold a fashion show in my own right, solely modelling gloves! I have gloves in every colour under the sun, in all sorts of fabrics, to match all outfits. Friends and family always get me gloves when they don't know what to buy me for a present. Definitely better than getting handkerchieves!


Susie

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

×