Bird Lady

Stem cell transplant

9 posts in this topic

Well Folks it looks like Birdman is going to have a allogenic stem cell transplant at Duke. They are testing his HLA with his siblings right now. We should hear within two weeks if there is a match. We will keep you posted!!

BMW


Hugs for All,

 

Julie (Bird Lady)

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Hi BMW ,

 

I'm confused......doesn't take much for me in that area!!! Didn't Bird Man just have a stem cell transplant or am I mixing him up with someone else?

 

Take care, Everyone.

Margaret

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That is exciting!! Please keep us updated!

Hugs,

Nina

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Congrats Birdman. All my best. If I am not mistaken Margaret, Birdman was involved in SCOT, in the cytoxan arm of the study. The stem cell transplant, within SCOT, is an autologous transplant(your own stem cells). He must be receiving the allogenic transplant outside the parameters of SCOT. Good luck Birdman! You are in great hands.

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Birdman and our birdman's wife. Please keep us informed on the procedures and how things are planned out. Anything to let us know what is going on with the stem cell replacement. I wish you the best birdman.


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Thanks for letting us know! It's great news and you know we will all have lots of toes and fingers crossed that everything works out for him.

 

Please do keep us posted.

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Dear Birdman and Birdman's Wife:

 

I hope you get a match! I'll be eager to hear how it goes and am sending best wishes your way.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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