haircutter

New member haircutter

6 posts in this topic

I was diagnosed with morphea this spring. I am seeking advice and expert prognosis. Is this site one where I can find some others with the same condition?

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Haircutter,

Welcome to the ISN forums! Yes, this is the place to get advice and to talk to people with the same or similar conditions. As far as expert prognosis, that's a hard one even for the scleroderma specialists. I hope you are seeing a specialist since this disease does require a doctor who is knowledgeable and has treated many similar cases.

 

We do have a large section on Morphea. Here is the link in case you haven't found it.

 

Morphea on ISN.

 

I'm sure you'll get some valuable information there. I don't have morphea so I can't have with any personal experience. I have the systemic scleroderma which is different. There are so many kinds and variations of scleroderma. No two people are a like but we do share many similarities. There are several people with morphea on the forum, so I'm sure they'll chime in. We also have many, many personal stories of patients with morphea. You might check them out as well.

 

Again, welcome. We hope to learn more about you.

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Hi Haircutter,

 

I'm just chiming in with a welcome. I can't offer any personal experience with morphea either, since I also have systemic sclerosis (systemic scleroderma). I know we do have a number of members with morphea, so hopefully some of them will see your post and join in the thread.

 

So here's my best wishes and a big ISN hug!


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Hello Haircutter

 

Welcome to the forum, you've already been given the relevant links about morphea.

 

My disgnosis is systemic sclerosis with a morphea overlap, I also have bullous morphea, it's really rare! :D I have morphea on my upper arms and bullous morphea on my shins. I must admit to not knowing much about the morphea having just been given the overlap diagnosis and the systemic form takes up most of my time.

 

I hope to soon download a picture of the bullous morphea onto this site so everyone can be grossed by it as as it's really ugly! A friend took a photo of it last night, I never thought I'd one day say "hey photograph my rare skin disease!" Oh well you never know what new horizons scleroderma will bring you.

 

There are others here with morphea and they will no doubt have more to say.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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