Sharonvandee

Small things bring such joy- Raynaud relief and Generosity

9 posts in this topic

As many of you may know I live in Australia where it is currently winter. I live an hour from the snow. We recently bought our own home which had no heating at all. I had been suffering severe Raynaud's attacks to the point where I had little quality of life and was constantly under and electric throw rug just to survive the day. It was warmer outside at 10 degree celcius then inside. This along with painful arthritis meant that winter was becoming a depressing time of the year. My parents were visiting last week and saw the effect it was having on me and was devastating that it was diminishing my quality of life so the following day they came home from shopping and handed me a gift certificate that allowed me to get Gas Ducted heating through out my home.Well what a difference it has made the kids said I am happier and I can now move freely through out the house. Suddenly I have some of my life back. I was so stunned by the generosity that I cried. They still don't understand why I continue to say thank you every time they ring. This was life changing generosity.I just wanted to share some good news for a change we all need some hope to lift our spirits. I know that this disease has certainly taught me to appreciate all things no matter how big or small.


Kindest Regards

 

Sharon

 

Diagnosis Scleroderma-crest, Scolliosis, Asthma, ILD, Plueral Fibrosis, GERD, Hiatus hernia, Anticardiolipin positive, ANA positive

 

a little bent and broken and almost beyond repair!

Share this post


Link to post
Share on other sites

Wasn't that fantastic of your parents - what a wonderful gift. I am sure we all understand what a difference your new gift has made to your quality of life.... :)

Share this post


Link to post
Share on other sites

Hello Sharon

 

Thank you for sharing this with us and how wondeful for you that your parents did this for you.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi Sharon,

 

Thanks for sharing that! Your parents sound like really special people and I have to say, they have a really special daughter.

 

I'm going to send you a warm hug anyhow, central heating or no!

 

Warmest wishes,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

Share this post


Link to post
Share on other sites

Hi Sharon

That is really good news. Isn't it nice to have such great parents? I'm sure they are only too happy to help you.

Looking forward to summer,

Helen

Share this post


Link to post
Share on other sites

Sharon,

What wonderful parents you have!!!!!! Such a caring gift for their loving daughter.

 

Enjoy the warmth.

 

Big Hugs,

Janey


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

I was so happy for you, that your parents visited and saw the need, Sharon.

 

Those of us with raynauds can truly appreciate the real pain associated with this.

 

Please thank your folks...from ALL of us here for their generosity, even though I have no doubt you already adequately did!

 

{{{Toasty Warm Hugs to all of you}}}


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now