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Update on doctor

6 posts in this topic

I thought I'd give you an update on my problems with getting my doctor to respond to my calls and letters. He called me the day after I called the manager of their office. He said he wanted me to come in that very day (in fact, during his lunch hour since the rest of his day was so booked). I didn't have to wait (always a miracle) and he said he was so sorry and that an investigation was going to try and figure out why the breakdown in communication. He said he valued me as his patient and that if this sort of thing happened again that I was to come right in without an appointment. He acknowledged the importance of monitoring my health issues in a timely manor since this disease is a sneaky one! I feel much better. Now I have all the tests lined up that need to be done and although it will make for an exhausting summer, it will at least give me the information I need in order to treat this disease. Thanks to you all for the advice. Big Hugs, Ann

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Woohoo! That's great news. It's really hard when something comes between you and a doctor you have a good rapport with. We depend on our doctors so much and have to trust them, but it's also awfully important to be able to feel that your input is valued and that you are an equal partner in your own health care.


Best wishes and hope all the tests show good results!

Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Ann, I'm so glad things have worked out with your doctor. Sometimes, I really think the doctor doesn't have a clue what goes on in their offices between staff and patients. Good luck on those tests! Cheryle

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What to go girl! You just kept pushing until you got a response. I'm so glad it work out. It sounds like you have his full attention.


Congratulations on a job well done!


Big Hugs,

Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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This is GREAT news, Ann! Thanks so much for letting us know the good news.


It does pay to go to the lengths you did and I am so happy you did so!


I can relate to this, as well.


A few years ago, I was referred to a rheumatologist in a town to which I would be living.

One little gal in the office took it upon herself to SCREEN patients and I happened to be one she kept putting off.

I did everything but stand on my head...in retrospect, that may have worked B) , yet she did not realize the depth of my need to see this dr.

FINALLY, a year later, I must have broken the code and was "allowed" to see the dr.


The dr was awesome and was very apologetic for what had happened. (She spoke to the young lady and got things straightened out). However, I only had this wonderful dr for 1 year and she had to close her practice as she was the only rheumatologist who also treated juveniles and needed to cover the 5 state area where she was much needed.

My point in all of this...valuable time is lost because of errors of others, particularly if one is not familiar with chronic illnesses such as ours.

I would hope that such happenings become rarer, for the sakes of others.


I would just like to say...I LOVE happy endings!

Special Hugs,


Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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