Turtle

CREST

2 posts in this topic

Hello,

As a newbie, I am wondering if there is a specific forum that is for those of us diagnosed with CREST syndrom. I am having a reoccurance of Morphea which had a nodular appearance. After the Dr. did the punch biopsy which confirmed Morphea with collegan strands in it the punch stitches did not hold and now I am left with a gaping hole that is filling with Calcium that was not present in the diagnosis. Has anyone else had this happen?

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Hello Turtle

 

Welcome to the forum! You are in the best place for all things scleroderma of which CREST and morphea are forms of. CREST stands for calcinosis, raynauds, esophagial difficulty, sclerodactyly and telangectasia although you don't have to have all 5 to be diagnosed with CREST.

 

Scleroderma basically breaks down into 3 categories, localised which includes morphea and linear and systemic which includes diffuse and limited also known as CREST and there is also scleroderma sine scleroderma which is scleroderma without the skin involvement.

 

Unfortunately slow healing can be a result of scleroderma as well as tight skin both of which may well have contributed to the problems you are having. I had a biopsy to confirm systemic sclerosis (also have morphea overlap) and the doctor had difficulty stiching the wound as the skin was so tight and needless to say it got infected and took ages to heal but finally did.

 

I have no personal experience with calcinosis and can only direct you to our calcinosis page that may prove helpful. Alternatively contact your doctor for their opinion how best to deal with the calcinosis in the wound.

 

I've no doubt that others will chime in and in the meantime keep posting.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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