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Snowbird

Interstitial Cystitis (I.C.)

7 posts in this topic

Hi Amanda

 

Was it you a while back that said interstitial cystitis (IC) is an autoimmune disease? I was always under the impression it was still sitting on the fence (my sister has a severe case of it)? If it was you....can you tell me where you found that information please? I would be interested in that reading. Thank you!


Sending good wishes your way!

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Hello Snowbird

 

I'm so sorry I don't remember who told me, my diagnosis was 4 years ago. I, like yourself, went on the internet and found autoimmune interstitial cystitis (IC) that can be caused by scleroderma, fibromyalgia and lupus. When I was diagnosed with IC I also had the beginnings of scleroderma but obviously didn't know it.

 

I hope this helps and take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Amanda

 

I didn't realize that either....thank you so much!!


Sending good wishes your way!

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Hi Snowbird,

 

We have a page on our main site about Interstitial Cystitis (IC). I also have that, among many other things.

 

See: Interstitial Cystitis by ISN.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hi snowbird!

 

The IC Network also has a lot of information. When my IC was really bad I was on their site everyday!

Hope that helps...

 

Nina

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