summer

Tongue Ulcers

8 posts in this topic

Hi, I have been suffering from tongue ulcers for a couple of weeks now. Every time I wake up there is a new one, on a different side of the tongue, or, one goes, another one comes.

 

Does anyone know whether this Scleroderma related? :P

 

Many thanks

Summer

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I don't know if they are sclero related, but I get them too. They seem to happen in "spells".....


Peace :)

Barbara aka relicmom1

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Hi,

Every visit to my rheumatologist involves a mouth evaluation. He always asks if I've had any mouth or tongue ulcers. I did only once and it was healed before I saw him, so I answered the affirmative and that was it. I've never thought to ask why he asks that. I see him next month and I'll add that to my list of questions.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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yes it is SSc related. It is a yeast infection and I get them too. I take

clotrimazole generic for mycelex and it is gone in about a week of so.

 

alice1

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The mouth is part of the GI system which is affected by sclero. You can have ulcers anywhere along the alimentary tract, from mouth to anus, so yes, canker sores can be related. A good way to avoid them is to avoid sugar and faithfully take lysine 1000 mg every day.

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Hi Summer,

 

We have a good link to oral care for dry mouth patients. It's the dry mouth that makes us susceptible to the infection that causes the mouth ulcers, as well as mechanical/chemical injury to the mucosa. (I had to stop eating those really rough crispbreads. That pleased the handsome hubby because I tended to have one as a bedtime snack and he hated the sharp crumbs in the bed. :lol: )

 

The mouth ulcers are generally believed to be caused by the organism Candida (good old Thrush), but this can be confirmed by taking a swab and checking it under the microscope. If it's done before starting treatment, and then afterwards, it also verifies the effectiveness (or not) of the treatment - usually an anti-fungal medication.

 

You might have a read of the Dental Involvement page - there are some interesting articles on the subject. And as always, check with your doctor before starting any treatment, even OTC products.

 

Warm regards,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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I used to get them too, but haven't had them in a while now that I think about it. They can be painful and annoying.


I may have Scleroderma, but Scleroderma doesn't have me!

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I have sores in my mouth, more on the underside of my lips. They do not ulcerate although they look like they should. The sores do not heal and go away they just seemed to stay. The worst part of my mouth problem was that anything even remotely spicy burns like hot pepper. It became such that I could not find a toothpaste that I could use. When I saw the Endo and asked about it with no hesitation she said Sjögrens and prescribed Evoxac. It took about 3 weeks to show results and then it was very slow. I still have sores under my lip but I am now again brushing with regular toothpaste, using a non alcoholic rinse and avoiding spicy food.

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