oddone

Gleevec

6 posts in this topic

Has anyone heard of Gleevec Trials for Scleroderma?


Oddone - Spouse - 38 yr old Husband diagnosed October 2006, Diffuse Systemic Scleroderma

Normal PFT(July 06), ECG(Nov/06)

Share this post


Link to post
Share on other sites

Hi Oddone,

 

Gleevec is in the very initial stages. See:

http://www.sclero.org/news/a-to-z.html#sd

 

It has just been tested in animals so far. However, it is very hopeful.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

Share this post


Link to post
Share on other sites

Just went to rheumatologist. appt on Wednesday with my husband, and she is currently approved for a trial (huge research Dr.), all paperwork to be completed in approx 1 mo.

She said that my husband would be able to participate, and will be hearing from them at that time.

We are new to all this, and don't really know what to think.


Oddone - Spouse - 38 yr old Husband diagnosed October 2006, Diffuse Systemic Scleroderma

Normal PFT(July 06), ECG(Nov/06)

Share this post


Link to post
Share on other sites

Hi Oddone--

 

One promising thing about Gleevec (as opposed to other promising therapies we occasionally hear about) is that its already being taken by people as chemo for cancer.

 

At least you know that its relatively safe. It would be great if your Dr. is doing research on patients.

 

I hope things get better for your husband soon.

 

Michael in Florida

Share this post


Link to post
Share on other sites

Shelley and Mike

 

Yes, it is a Gleevec trial, and we should be hearing more about it in the next month or so


Oddone - Spouse - 38 yr old Husband diagnosed October 2006, Diffuse Systemic Scleroderma

Normal PFT(July 06), ECG(Nov/06)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now