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ISN Guidelines Quick Byte

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Hi, Jeannie


Thanks so much for this. I look forward to your future instalments. I know it must be frustrating, especially to new members, to get used to how things work around here. Hopefully this will give us all a little insight into the process. It's easy to miss things in the first read of the guidelines in our excitement to get into the forums and post. I refer to them several times a week.

Warm wishes,



Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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Yea, I have read that too several times, but I still forget somethings time to time. I have a problem remembering to use Generic names like NSAID's instead of brand names.


I am sure there are other boo boos I make that I am not aware of :)




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Jen, don't feel bad, even I need to have my messages edited occasionally, and if anyone should know better, it's me!


But all our guidelines have been developed through the school of hard knocks and have stood the test of time for keeping us focused on stellar information and support for scleroderma and related illnesses, and on what unites us, not divides us.


I think it is nearly impossible to actively participate in the forum for any length of time and not have any messages that are edited. But that is why we have such a fabulous, well trained and dedicated support team, to keep our spirits up while also keeping us on the straight and narrow so that we all maintain our community reputation for stellar and reliable information and support, throughout the world.

Warm Hugs,


Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099


The most important thing in the world to know about scleroderma is sclero.org.

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Hi Fellow Forum Members,

I'd like to introduce a new feature to help us all make the most of our forum experience: ISN Quick Bytes. These short posts are intended to clarify important points and serve as a helpful reminder. They may also help you to understand why certain things have been edited or even deleted in entirety.

The first series will deal with the Forum Guidelines (which, of course, you read and set to memory when you joined the Forums). The guidelines are always only a click away at the right of the green bar at the top of every Forum page.

In the introduction, we are reminded that: This forum is a free service of the International Scleroderma Network (ISN) at www.sclero.org. The ISN is a nonprofit international patient and medical organization that delivers top notch research, support, education and awareness for scleroderma and related illnesses. All of these guidelines support the ISN's international and nonprofit mission.

Today's Guidelines Quick Byte is Mainstream Scientific:

Mainstream Scientific We focus on proven remedies and legitimate studies from mainstream scientific studies, as covered on our main www.sclero.org website. We avoid discussions of vitamin, herbal and alternative therapiesthat have not yet been proven to be of benefit for scleroderma. To avoid malicious codes, we only allow links that are from and within our www.sclero.org website. Many alternative therapies have been reviewed and discussed on the website pages linked above.

Accessing certain sites can cause possible damage to your computer. Because of that, we only allow links in member posts that are already linked to the www.sclero.org site. If you have a valuable resource to share, please send a PM to Jo Frowde, our ISN News Manager.

Please bear in mind that we try to have the most current, most reliable information anywhere it might appear on the International Scleroderma Site and that includes all the Forums. As much as I think my grandmother's recipe for wilted dandelion greens with hot bacon dressing will cure most of man's ills, it's not current, proven, or even studied beyond those members of my family who've been forced to eat this springtime delight.

Here's that link again for those of you who just can't wait for the next Guidelines Quick Byte to arrive: Forum Guidelines (link found in the green bar at the top of every Forum page).

Best wishes and happy posting,

Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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