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Temporary Sacral Nerve Stimulation

11 posts in this topic

I was supposed to have the temporary implant done a week ago but they cancelled after the anaesthetist was not happy to do it as a day patient. I did think I would have to wait quite a while but had a phonecall on Tuesday to say they had a cancellation & could take me in on Monday 7th September as an inpatient. I've just received the letter confirming it all but have to ring before we set off just to make sure there is still a bed available. I'm hoping that it will work for me so that they can then put a permanent one in place. I know that others suffer from urgency & leakage and it's not easy to talk about but I have found the consultant, doctors & nurses have all been very good & understanding which has made it easier for me. So if you are having problems do tell your doctors because they may just be able to help you.

 

Jensue

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Good luck with your implant! I'll keep my fingers crossed that everything goes OK and they not only have the bed available but that it is nice and comfy. :)

 

Warm hugs,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Hello Jensue

 

I really hope things go according to plan and that you get the results you're hoping for. Thank you for sharing this difficult issue here on the forum,it encourages others with the same.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Thankyou Jeannie, Amanda, Susie & Sweet for your kind wishes.

 

I still have to ring at 6.30 too check they have a bed for me but I've got my stuff together except for my collection of medications all of which must be in their original boxes with pharmacy labels on! I'm feeling Ok about it but perhaps tomorrow it will be different.

 

Speak to you soon.\

 

Jensue

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Well I've had the electrodes implanted and the Ano-Rectal Physiology guy came & connected up the leads to a test stimulator, a wonderful accessory which clips on to the waistband of my trousers. It feels a bit like a tens machine when it is switched on, most of the time I don't know it's there. I just can't take a shower for the next 2 weeks! This means doing strip washes because the dressing on my lower back must not get wet at all.

I did meet a woman yesterday who was having the permanent one fitted she told me that the temporary one really had worked wonders for her and couldn't wait for the permanent one to be switched on.

 

So here's hoping

 

Jensue

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Jensue,

I'm glad you were able to get your implant! I hope it works for you. Lots of fingers crossed.

 

Please keep us updated.

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Hi Jensue,

 

That's great news! I'm glad everything went well. How long again until you can get a permanent implant?

 

I've got this bit of trivia lurking in the back of my mind (you should see my closet! :P ) - the proper order for a strip wash (or bed bath) is face first; arms and upper torso; legs and lower torso; the 'bits'; feet last. :lol:

 

My Gran always called it a cat bath.

 

Warm but careful hugs,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Hello Jensue

 

I am sure this will be a marvellous experience for you. As for bathing, well it's over rated in my opinion. Prior to the addition of the bath chair I was not a regular bather/showerer and I lived to tell the tale as did those around me! :lol: Think of it as something to look forward to!

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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