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Alexandra

Telengectasia or red spots!

6 posts in this topic

Good evening all!

 

I am back from a wonderful warm week in Greece,where the sun warmed my bones, my fingers were pink and I had a massage every day! Just heavenly!

 

My dear best friend took a photograph of my sleeping on the beach and captured my 'red spots' or Telengectasia so well I thought I would let you see.This is my first attempt at attaching a photograph to a post so I hope it works!post-571-12530460335418_thumb.jpg

 

I feel it may be helpful if any new sufferers want to know what they look like, and to confirm that they are not painful at all but do just look rather 'spotty'!

What are friends for?;)

Much love to you all

Alex

xx

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Thank you for the photo, Alex.

 

Just a reminder to members that you have to be logged in to see any images, including avatars and images posted in emails. So if you don't see Alex's photos, it means you're either not registered or not logged in yet. If you're not registered yet -- why not? Becoming a Sclero Forums member is free and comes with many privileges too, like being able to post messages and see Alex' photo.

 

Another reminder is that this shows what telangiectasia look like. But only the telangiectasia on our hands or face can count towards a possible diagnosis of systemic sclerosis (scleroderma) and then only if they occur in combination with other symptoms. Telangiectasia are very common in the general (healthy) population and can be caused by things like sun exposure and menopause (even ones on the hands and face, which is why other symptoms are absolutely necessary for a scleroderma diagnosis to be even possibly considered.)

 

Ah, to be on the beach, to be in Greece, ah, what a lovely holiday Alex got to take, with her telangiectasia hopping a ride for some fun in the sun!


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Oh yeah...the beach in Greece, ugh how awful!! Just kidding! Sounds like you had a great time Alex (good for you!) and thank you for posting the picture. Never having seen them, I was imagining that they were very intricate flawless all the same sized little dark red dots...but I see they are all different...interesting and educational for me!

 

Shelley, I had no idea they only counted if on the face or hands for a diagnosis either...

 

I am forever learning something new here!! :D


Sending good wishes your way!

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Hi Alex....glad that you had fun in Greece. I have never seen T spots up close so your back was 'educational' to me. I always thought they were raised red areas. On a lighter side, I like the hummingbird!!!

 

Take care, Everyone.

Margaret

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Hi Alex!

 

I am so jealous of your trip! Sounds wonderful. You did a great job attaching a picture and you have a lovely back. :) I have a friend that has the same problem on her face, but not too bad. Do you have them on your face as well? If so you cover them so well! Love ya baby!


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Hi Alex

 

With regard to your Telengectacia have you had or considered laser therapy for your red spots ? It does work but obviously doesn't stop further spots from developing so requires continuous visits for treatment. The laser works best on untanned skin. It's a quick and almost painless procedure. The skin takes just a few days to heal. Certainly worth considertion if you have if you have Telengectasia spots on your face.

regards Tricia.

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