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stargazer12

Scleroderma and Hearing Loss

4 posts in this topic

Hello everyone,

 

I am wondering whether anyone has either heard of or experienced a link between scleroderma and loss of hearing. Two years before I was diagnosed with scleroderma, it became necessary for me to wear hearing aids at a rather young age. There is no history of hearing loss in my family, and I am not aware of a particular cause for this loss such as a loud noise. Since other health issues that were once treated as isolated can now be clearly included in the list of my scleroderma symptoms, the question seems reasonable. After all, there is skin in the inner ear, and if the tiny hair-like nerves there are not functioning well, could it be that hardening skin has displaced them or otherwise impeded their operation?

 

Thank you for any insights you can share.

 

Stargazer

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Hello Stargazer

 

Well according to information here on this site - Scleroderma can affect every part of the body, including the ears. Many autoimmune diseases can cause Autoimmune Ear Disease. - Have a look at the page on it for more information. It's amazing how sclero gets around the body.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi,

 

I've wondered the same thing. My left ear has tinnitus quite bad at times, actually constantly but I can tune it out if there is enough background noise. My ears have been so itchy lately. Not the outside ear, but inside the ear where you can't scratch. I thought it might be allergy related, but I haven't been having other allergy symptoms. I hate to even bring up the subject of ringing in the ear since I pretty much was cut off at my rheumatologists office once because my list of issues was so long. I was going through my issues, and the doctor told me I could quit with my list.

 

Mando.

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I developed a high frequency heraing loss with severe tinnitus. No previous exposure to any loud sound, so that wasn't the cause. It mainly causes speech to sound garbled - sort of like the person is mumbling - and nasal voices are very difficult to understand. I wear hearing aids if I'm going to be in a difficult situation. I have sclero (CREST) and Sjogren's.

 

Craig

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