Buttons

Sacral Nerve Simulation Surgery

36 posts in this topic

Best wishes Sweet. My wish is that everything will go well.


I may have Scleroderma, but Scleroderma doesn't have me!

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Hi Sweet,

 

Hope all goes well for the colonoscopy, when I had mine done they got me extra warmed blankets & it does help. Are you going to be sedated? I found the sedation OK but seem to have really reacted to the anaesthetic and still feeling a bit wobbly but I did manage to get some sleep last night & am going to take it easy today and probably sleep some more!

 

Buttons

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Rest today Sweet. We will cover for you. I hope all goes well and you are home and comfy in no time at all. Hey, I always take my socks and or footies, gloves and sometimes even a little stocking type cap to wear when I go in for procedures or surgeries. When we can keep our core warm it is easier on everyone involved. You go girl.


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Welcome home Buttons! I am glad things went as well as they can and that they'll soon be switching you on. Rest now and recooperate. :flowers:

 

Hello Sweet, you need to rest also, I have had a colonoscopy before and found it somewhat traumatic with the "prep" you have to do days before! :flowers:

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Amanda, ya the prep was by far the exhausting part.

 

Buttons, I looked the doctor straight in the face after we shook hands and said "I want more than the normal amount of drugs, I don't want to feel anything, I don't want to remember anything". He laughed and said "You got it" it went fabulously. lol


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Sweet I don't think you're are whimp, we are just all different and things affect us in lots of ways.

 

I've slept an awful lot this last week, constantly feeling very tired and not able to concentrate, I've assumed it's the anaesthetic but a nurse friend said that it's out of your system after a couple of days. Added to that I'm in quite a bit of pain again today and I think it might be that I've simply done too much! I did all my ironing this morning including 12 shirts for my hubby! He's got a lot of work on at the moment so it didn't seem fair to ask him to do it all.

 

Tomorrow I go for a wound check, I think it's okay but I am very sore and sitting is not easy!

 

Buttons

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Well I've been back today and have been switched on! It does feel different to the temporary one but that is largely due to the fact they program the device and they program the hand control unit so that I can switch it on & off or turn up the amplitude of the pulse (at bit like a tens machine). He did say that it may take a few weeks or so to get exactly the right program that will do the job for me with as little side effects as possible. The ones which worked the best affected my leg so he had to switch the amplitude down, I will just have to see. I can't over stretch or bend too much in case the electrode or stimulator get displaced because if that happens they have to operate again to repair or replace the parts apart from that I can do everything else.

 

I'm keeping my fingers crossed still that it works for me.

 

Buttons

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Hello Buttons

 

Glad you're now all switched on! It's amazing what they can do these days, man that makes me sound real old! I hope you get the setting right quickly and that you and the implant have many happy years together.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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