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Sacral Nerve Simulation Surgery

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Hi Buttons

I had the same operation about eight years ago.I have found it very successful although don't expect a complete cure. In my case it took a couple of months to work at it`s best. i can`t remember exactly, but I think my first battery lasted about five years I did not realize what good it was doing until the battery went flat. Hope all is well with your recovery. :)

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Hello Prof Plumb

 

Welcome to the forum! It's encouraging to hear that your surgery is still successful today.

 

Take care and keep posting.


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Hi Professor Plumb

 

It has been 3 weeks since they switched it on and have had some problems but they have changed the programming of it which seems to help. They did warn me that it would not necessarily cure all the issues I have but it is helping some of them. Do you get any side effects from it? I'm getting issues with my toes curling up so this is why I'm trying different programs.

 

I'm so glad to hear that yours has been so beneficial. I have been told that I should switch it off at night but the people who make it say to leave it switched on all the time. I was told to turn it off to help conserve the battery but my hubby thinks that by turning it on and off could actually use more power. What have you been told to do?

 

Buttons

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Hi Buttons

 

I had mine fitted by St Marks hospital in Harrow, my operation was paid for by the manufacterers of the appliance. I haven`t had problems with my toes curling but as I was working as a plumber the electrodes would move on the nerves and throw my leg up in the air, they cured this by turning off two of the four electrodes. I keep my stimulator turned on all the time as most of my stomach problems are in the morning. I have not set any alarms off recently in shops but this was a problem occasionally and took some explaining! I had mine fitted as part of research so things may have changed since then. I now teach plumbing so do not put so much strain on the wires. If you have any other things you think I might have come across please contact me.

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Thanks for that Info Professor Plumb, it's good to know I'm not the only person who has one of these fitted. I was given a special card to carry at all times so that I can show it if need be to stores or the airport etc. So far I haven't been anywhere that has set it off.

 

I'm now using a different program and that seems to be helping but still causes my calf muscle to twitch in one leg. Still I'd rather put up with that rather than the alternative. It's not solved my issues completely but it is substantially better and means it's easier getting out and about.

 

Like you I've been told not to put strain on the wires so some of my Tai Chi moves I can't do to the full extent.

 

Do you carry your controller with you all the time or leave it at home?

 

Buttons

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Hi Buttons

 

I don`t carry the remote control with me unless I`m going on holiday but I suppose I should. I know what you mean about the calf muscle but you do not notice it after a while, unless you switch it off then back on again.

 

Do not go through the x-ray machine at customs, they will give you a body search instead. My battery pack is fitted under the skin on my stomach and I found things like electric drills used to switch it off accompanied by a nano second of a power surge up my backside! Quite amusing really. I hope you are starting to get used to it then you will forget it is there. ;)

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