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I have been diagnosed with generalized morphea. I used to be a smoker but quit 15 months ago. Well last night I was with some friends and they all smoke so dummy me bummed a cigarette. You would think after 15 months I would have been hacking away on that cigarette, but I didn't. It was like I never quit. Now I'm not going to start smoking again, that isn't my question. Have any of you experienced that? I'm wondering if my diagnosis is wrong and my lungs are fibrosing? My rheumatologist has never really tested my lungs.

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Hi Isobelle,


I'm not sure if I understand your question. Which was it: that you were dumb to bum a cigarette; that not coughing when you smoked was a sign of fibrosis; or that not coughing isn't a sign of fibrosis?


I can answer one question real easy (comes from being a long-term mum). Yes, you were dumb. What were you thinking? I could give you my whole lecture about social drinking and social smoking and so could every one of my kids, but I'll just give the final line: Don't do that again, you are smarter than that! (Were you listening? You won't do that again, will you?) :huh:


Your rheumatologist probably listens to your lungs when you see him. If you had fibrosis going on, he would likely hear the "Velcro Crackle", so called because it sounds like the tape pulling apart when you breath in and out. If your lungs sound clear, he probably didn't see a need for more testing. Symptoms like shortness of breath, especially with normal exercise, should be reported. If you go to the Pulmonary Fibrosis Symptoms page, you can read more.


If your friends try to offer you a cigarette again, just say Jeannie-the-Meanie says absolutely not. You don't want to listen to one of my lectures, do you? Smoking is SO bad for your health.


Warm hugs,

Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Hi Isobelle44


I don't fully understand your question either...do you have a diagnosis?


Don't do it! Don't do it! 2 huge reasons...as Jeannie said, one is Fibrosis and the other is (and/or your could also get) COPD (Chronic Obstructive Pulminary Disease). I quit 20 years ago...and thank goodness I did then...

Sending good wishes your way!

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Hi Isobelle


I would agree with Jeannie; smoking is not a smart move whether or not you have Pulmonary Fibrosis! :blink:


I have Non-Specific Interstitial Pneumonia which is a form of Pulmonary Fibrosis; thankfully although I have scar tissue on my lungs I also have inflammation which my consultant (a top lung specialist) feels confident he can reverse to a certain extent. However I have never smoked in my life and thank goodness for that and the fact I was extremely fit in the first place........these are the only reasons that I am not totally incapacitated and carrying an oxygen cylinder around with me 24/7....... (not a good look!! ;) )


My symptoms (which are fairly classic) were first and foremost a dry cough which I could not get rid of and a shortage of breath when walking my dogs up a steep hill. I knew something was radically wrong as I have run up much steeper paths without a second thought; thank goodness my doctor realised it wasn't just a chest infection and referred me to a consultant straight away.


It's entirely up to you, Isobelle, but my advice, for what it's worth, is next time you feel tempted to have a cigarette.........think of your lungs and DON'T!!! :VeryHappy:


Kind regards x

Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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You have my sympathy for your lapse- a hard habit to let go and good for you for your past 15 months.

I have been a non-smoker all my life- except for the one time I tried it. I indeed coughed - looked at the thing as said to myself why would anyone want to do that. But it never even got to my lungs - I started coughing when it hit my throat- I never mastered the sucking it into the lungs- I think that would have taken a couple of tries. I only took one little half hearted puff.

So I think that your "training" from the bad ol' days probably still holds and is not a reflection of the condition of your lungs. I reacted from the stuff hitting my throat only- gag, cough, cough.

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enjoy the ride,

Looks like you enjoyed the time with your friends. Being part of your friends good times is a tribute. It is also a tribute that you have gone as long as you have without smoking. I just hope you aren't tormented for the next 15 months into wanting another one to satisfy this new urge. It seems when a person just has one they end up sneaking another then another. Maybe you have survived this long and can turn your back and not pick up another one. The work has been done. You have succeeded in your original task of quiting. Keep your self as healthy as you can. Next time you are out just say to yourself. Yeap, I could have one but I might not get away with it so easily next time, so I don't really want one bad enough to take the chance. Your friends will care more that you are well and out with them than any thing else. I am glad you enjoyed the smoke without it getting you. Now, take a deep nasal breath in through your nose. Let it out through your mouth. Build up and strengthen your lungs, with this exercise. If you are worried about your lungs you should have a baseline CT scan. This way your doctor's will be able to see any changes readily in the future. It wouldn't hurt to have PFT's done at least once every 9 months to check the functioning and flow of air in and out of those precious pieces of equipment. All for now. Looks like we may be done with lecturing even though you may not have needed it. It helps us.

Strength and Warmth,



Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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