Sign in to follow this  
Followers 0
Winter

+ANA/CREST and hairloss

3 posts in this topic

Hello there -

 

I have had diffuse hairloss since having my son in Sept 2006. What I thought was postpartum HL finally led me down the path to finding I have a +ANA with the centromere pattern. I have esophageal dysmotility and had the Heller Myotomy in June 2008. Other than that and the HL, I have no other scleroderma symptoms.

 

I had a scalp biopsy done and it comes back as folliculitis decalvans, which is a scarring alopecia. My head/hair look nothing like the pictures that I see of this disorder (yet). I also know my ferritin had been very low and I am slowly getting it up over 70.

 

I just don't know if this hairloss could be related to the +ANA. The Dermatologist said no, but I thought scarring alopecia can be a part of scleroderma?

 

Thank you for any input!

Share this post


Link to post
Share on other sites

Hi Winter,

 

I may be wrong (I often am!) and I have no medical training at all. But here's how I think it works. The biopsy you had would/could/should tell if the alopecia is due to scleroderma or something else. And folliculitis decalvans would be a "something else". Therefore, it would not be caused by scleroderma. Apparently, folliculitis decalvans might be caused by a staph infection, which would make it quite different from scleroderma. And, possibly more treatable, too.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

Share this post


Link to post
Share on other sites

Thank you for your response! It's all so confusing. My dermatologist did give me a prescription for an antibiotic and a scalp treatment, so we'll see if it does me any good.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
Sign in to follow this  
Followers 0