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Penny

Turning up like a Bad Penny

9 posts in this topic

:blush:

I am sorry that it has been so very long since I have last posted anything... my health took a pretty big turn for the worse and I have been bouncing from doctor to doctor and test to test trying to get a step ahead of things.

 

My latest... they did a gastric emptying test on me (nothing like having a person wearing a lead apron and gloves holding an extension pole that itself is holding a lead container with a styrofoam cup in the lead container with a spoon sticking out of it and hearing them say "eat this" to give you that warm fuzzy feeling) and diagnosed me with severe Gastroparesis. Now, all of a sudden the doctors no longer give me that 'uh-huh' look when I tell them that I do not eat and am never hungry... nor so they give me a hard time about not being able to keep any medications down. Instead they are rubbing their hands in glee thinking "oh boy... my first gastric pacemaker patient!" I think I will let them have their little fantasy for a bit before reminding them that I can't have general anesthesia.

 

Add to this that I keep getting pneumonia (thanks to the fact that my swallow reflex seems to be on again off again so if I am not careful I breath in a sip instead of swallow it) and you have a pretty good idea of what I have been busy with.

 

I will be reading through the posts (ya' all went and changed the forum look and I have to learn all over again how to navigate this thing... anyone have a GPS I can borrow?) and trying to catch up on everything...

 

Huge hugs!!!!

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Oh frabjuous joy! You are back!!! Gee, Penny don't ever do that to us again! Seeing your name was the nicest thing that could have happened. And I'm really, really glad they are finally getting somewhere. By the way, do you glow in the dark now? :bye: :wub:

 

 

Love, hugs, and a deliriously happy Happy Dance!


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Jeannie...

 

I have not turned off the lights to check to see if I glowed, though Loki does give me funny looks at night now... hmmmmm...

 

I have missed everyone very much... now that I have a diet (of sorts) to follow that makes me a little more comfortable and my latest bout of pneumonia is waning I will try to be more active.

 

The Gastroparesis diet is what I call the "if nutritionists don't want you to eat it you know it is the right thing" diet. How many people are told "low fiber, all processed canned fruits and veggies, nothing fresh" is the way to go? It seems that all my trying to eat healthier was what was destroying me! :blink:

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Penny Roar, I am happy to hear that you are finally getting somewhere with your doctors. I think I would think twice about any surgeries with these doctor's that really didn't believe you. Find a doctor that has done this type of surgery many times it that is what is required. There are a couple other ladies that are dealing with some of your same issues. I am glad I am in the mild gastric emptying category. With medications and a very careful diet I have been doing quite well for quite some time now. Keep us informed on what you are doing that is starting to work for you as things get better for you.


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Penny, we've been very worried you were a "spent Penny"! I'm very glad to see you back.

 

Sorry, we don't have a GPS for the new forum yet. You may have to take some bumpy back roads and a few wrong turns to find your blog again, but it is still here and still waiting for your next take on Good Penny, Bad Penny.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Penny, I'm so sorry to read that you are having such troubles. Hopefully,you'll have an upturn SOON!

 

I also wanted to say HI to you and please continue to let us know how you are doing?

 

P S I'm sure there are more folks here than just lil ol' me who feels as you do about getting familiar to our new, but great format! ^_^


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Welcome back Penny! I was just wondering the other day where you'd gone, now settle in and get going when you're good and ready.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Wow, it is so good to hear from you again! As you can see you have been well missed. I laughed when I read Shelley's reply. In Scotland to 'spend a penny' is a euphemism for urinating. :D


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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