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Jeannie McClelland

Just a Guidelines Reminder

3 posts in this topic



Just a reminder of a couple of our Guidelines:


Sales and Recruiting To minimize intrusive sales pitches, we only mention specific organizations, websites, products, brands or stores that are listed on our main website. We use generic terms like "hand lotion" or "baby shampoo"or just bypass the topic altogether.


and this extract from:


Safety and Privacy Our forum messages can be read by everyone . . . . We avoid personal indications of taking pain medication or other addictive medications so that we are not victimized by drug dealers or abusers.


Our Forum Guidelines require that we not mention any narcotic pain relievers. The purpose of the guideline is to avoid mention of drugs that are sought by drug addicts, and pain medication (as well as narcotic-like substances, e.g., pain medication) often fall into that realm. Some drug abusers frequent message boards like ours trying to find members who are on "good" drugs so that they can befriend them and perhaps make an interesting purchase or a surprise burglary. So we just skip around the topic by discussing pain medication in generic terms only.


We no longer allow medication lists in forum signatures, as it is both a privacy and safety issue.


With best wishes,

Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Well, Jeannie, if I can't toss out brand names or discuss my really cool pain med, I mean, what is there left to talk about? I feel inclined to throw a fit.




There now, that made me feel better.


I suppose you're right, in the end, all the guidelines do serve to help make this a fabulous forum. I really appreciate your gentle reminders, which of course for some of us is the first time we've ever even known about the Sclero Forum Guidelines. So it is nice to learn about them, have more explanations, and learn to appreciate the ways in which they help keep us all safe and sound.



Warm Hugs,


Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099


The most important thing in the world to know about scleroderma is

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